Give yourself a break

Recently I’ve been beating myself up about putting on weight during lockdown and the fact I’ve not exercised a huge amount. My body isn’t how I’d like it to be. My heart is now fixed so there’s no physical reason for not doing more exercise.

Metabolism

My fixed heart now seems to have slowed my metabolism down because it is working more efficiently so I seem to be burning less calories – typical hey?  Anyway I was moaning the other day to a friend and she reminded me that I have actually had 3 pregnancies/babies in 5 years which is quite a lot and a huge impact on your body. Add into that that I’ve also had and recovered from heart surgery after having a titanium device fitted inside it.

pregnant-sunshine-dexter-violet-skies
My third pregnancy, living in a building site during one of the hottest summers on record

Looking back over 5 years

I had a very traumatic birth with my first baby Violet who was undiagnosed breach resulting in me being rushed into surgery shortly after the birth. She was blue lighted to Alder Hey in Liverpool where she underwent heart surgery at 4 days old. She survived that luckily and we took her home 10 days later with major chest wounds weighing less than 5 pounds. Anyone who has had a prem baby will understand the additional challenges with caring for a baby so small.

Childloss x 2

Then I’ve also had the trauma of losing two children. First Violet at 15 months old then my second baby Arthur. With Arthur we had to face the near impossible decision of a termination for medical reasons after hearing at his 20 week scan that his brain hadn’t developed at all and in fact was just fluid. We said goodbye to him at 22 weeks and he was stillborn.

Cemetery-July-2020
Violet and Arthur’s Grave Summer 2020

We’ve then undergone a horrendous inquest hearing for Violets loss almost 2 years after she died having to relive every moment of it and I did that whilst heavily pregnant with Aurora my third baby.

Third pregnancy

I faced the additional stress of a rainbow pregnancy following those two losses whilst rehabilitating a German Shepherd and project managing a home extension that we lived in throughout too. All while still working as a PR consultant too.

Kitchen-Dexter-Renovation-Violet-Skies
Exactly 2 years ago today this is what our house looked like

Child with special needs

After Aurora was born we discovered she was deaf and so are now adjusting to raising a deaf child. She also doesn’t sleep so 2 years in we’ve had to adapt to only 4-5hours sleep maximum a night on a good day.

Other minor things

In the last 5 years of my life I’ve also gotten married, travelled round the planet twice, raised over £50k for Alder Hey hospital, had heart surgery and most recently a cancer scare (luckily now confirmed as nothing to worry about).

The-Violet-Ball-September-2018-violet-skies

Work wise

I also started this child loss blog to help others out there and to try to raise more awareness of the issues faced. I’ve started lecturing in marketing at university, launched a new travel business and also made more of my love for photography by studying for a diploma in it. Now with covid changing the landscape of my career in travel and hospitality PR too. Grounding airlines and closing bars/restaurants. The working me has seen a huge shift in my outlook and what I do.

I’d say that’s quite a lot in 5 years wouldn’t you? So you know what? I’m going to give myself a bloody break and a pat on the back for still being relatively sane. So what if I’ve put some weight on. I’m not going to stress about that at all and in the grand scheme of things now with covid challenges too who cares?

Make a list people

So my word of advice to anyone out there is to make a list of all the things you have faced, overcome, survived and achieved in the last 5 years. I bet like me you’ll be surprised and so try to recognise what you have actually done rather than beat yourself up because of a saggy tummy, grey hairs and wrinkles. See how amazing you actually are to have got to where you are today.  What have you done, over come and experienced in the last 5 years?

Appreciate the now

I did think about doing a list for the last 18 years but that just made me feel very old and exhausted 😂maybe I will write a memoir someday to share the full story and it’ll be perfect bedtime reading (to send you all to sleep or you will think it is fiction).

Big love to you all and thanks for reading

Love sarah

Always violet skies xx

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A Literal Broken Heart

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When I was a teenager and even throughout my twenties I would talk about having a broken heart over an unrequited love or a relationship break up. Later on once I hit my thirties my parents 38-year marriage came to a sudden end and again I was “heart broken”. The world as I knew it ceased to exist. Then my beloved dog Max died suddenly that Christmas Eve and I was “heart broken” again.

Heart broken

It seems heartache and being “heart broken” is a familiar feeling that us humans often talk about but what I have experienced in the last few years shows that everything is relative and you can only compare the experiences you have been through personally. If you are fortunate to have only ever suffered the break up of a relationship then you will know this to be your worst emotional pain. If you have lost a relative or pet then this might be the worst pain imaginable.

Max
Max

Losing a dog/ best friend

After I lost my amazing dog Max I decided that I probably wouldn’t have another as the pain and grief after losing him I felt was unbearable, so I couldn’t face ever putting myself through that again.

Mother to a heart baby

Six years later I became a mother to Violet who was born with a heart defect. She had to be rushed into open heart surgery at four days old, the stress and anxiety during those nine hours she was under the knife was at the time I thought unbearable. We were so relieved afterwards when we were told her heart was a perfect fix.

Me & Violet at Alder Hey
Reunited for the first time in several days after she was transferred to Alder Hey in Liverpool & I was still at St Mary’s in Manchester.  Cuddles before heart surgery.

Anxiety

Every time she had to go to hospital for a heart check up of course we were stressed again praying all would be ok and it always was, until she was rushed into hospital with suspected pneumonia in September 2016. The anxiety during those ten days in hospital was again almost unbearable. I even told friends that there was nothing worse than watching your child poorly. Being tortured whilst doctors inject them/take samples and attach them to drips and there being nothing you can do to relieve their pain.

Violet in Children's hospital MCR.JPG
Violet during her time in Manchester Children’s Hospital in the days before she died

Death of a child

Then suddenly she died. Our precious daughter died. We then discovered a totally new level of pain and heartache that we had never even come close to before. Every other type of “heartache” I had experienced in my life until this moment paled in comparison. I actually felt my world had truly come to an end and the pain then and now is still sometimes unbearable. But bear it we do, as we have no choice in the matter.  It is indescribable to anyone who hasn’t gone through it and unimaginably scary to those of you who have children who are alive.

Metaphorical and physical

Anyway within six months of Violet’s death I discovered that not only do I have a metaphorical “broken heart” but I was diagnosed with an actual physical broken heart too. It was discovered that I have what they call an ASD or hole in between the top two chambers of my heart. I have a truly broken heart both physically and emotionally. How ironic?

Perspective

So life wise I guess the positive take on all of this is that it has helped us (my family) to put things into perspective. We no longer stress about the small things in life anymore and I tell myself that, at the end of the day, I have been through the worst thing imaginable, so everything else, including possible open heart surgery on myself is easy in comparison.

Dexter
Dexter

Everything is relative

Nine years after the loss of my beloved dog Max we adopted a two-year-old German Shepherd, as I now realise that I can cope with the loss of a pet if I can somehow survive the loss of two children. So we welcomed Dexter to our family and we now have a giant fur baby to look after who gives us unconditional love. What’s not to love about that, even if it only lasts for 8 years? It is relative after all and we have chosen to live in the present moment, as who knows if a bus will hit us tomorrow, so make the most of today folks always.

Love Sarah x