Give yourself a break

Recently I’ve been beating myself up about putting on weight during lockdown and the fact I’ve not exercised a huge amount. My body isn’t how I’d like it to be. My heart is now fixed so there’s no physical reason for not doing more exercise.

Metabolism

My fixed heart now seems to have slowed my metabolism down because it is working more efficiently so I seem to be burning less calories – typical hey?  Anyway I was moaning the other day to a friend and she reminded me that I have actually had 3 pregnancies/babies in 5 years which is quite a lot and a huge impact on your body. Add into that that I’ve also had and recovered from heart surgery after having a titanium device fitted inside it.

pregnant-sunshine-dexter-violet-skies
My third pregnancy, living in a building site during one of the hottest summers on record

Looking back over 5 years

I had a very traumatic birth with my first baby Violet who was undiagnosed breach resulting in me being rushed into surgery shortly after the birth. She was blue lighted to Alder Hey in Liverpool where she underwent heart surgery at 4 days old. She survived that luckily and we took her home 10 days later with major chest wounds weighing less than 5 pounds. Anyone who has had a prem baby will understand the additional challenges with caring for a baby so small.

Childloss x 2

Then I’ve also had the trauma of losing two children. First Violet at 15 months old then my second baby Arthur. With Arthur we had to face the near impossible decision of a termination for medical reasons after hearing at his 20 week scan that his brain hadn’t developed at all and in fact was just fluid. We said goodbye to him at 22 weeks and he was stillborn.

Cemetery-July-2020
Violet and Arthur’s Grave Summer 2020

We’ve then undergone a horrendous inquest hearing for Violets loss almost 2 years after she died having to relive every moment of it and I did that whilst heavily pregnant with Aurora my third baby.

Third pregnancy

I faced the additional stress of a rainbow pregnancy following those two losses whilst rehabilitating a German Shepherd and project managing a home extension that we lived in throughout too. All while still working as a PR consultant too.

Kitchen-Dexter-Renovation-Violet-Skies
Exactly 2 years ago today this is what our house looked like

Child with special needs

After Aurora was born we discovered she was deaf and so are now adjusting to raising a deaf child. She also doesn’t sleep so 2 years in we’ve had to adapt to only 4-5hours sleep maximum a night on a good day.

Other minor things

In the last 5 years of my life I’ve also gotten married, travelled round the planet twice, raised over £50k for Alder Hey hospital, had heart surgery and most recently a cancer scare (luckily now confirmed as nothing to worry about).

The-Violet-Ball-September-2018-violet-skies

Work wise

I also started this child loss blog to help others out there and to try to raise more awareness of the issues faced. I’ve started lecturing in marketing at university, launched a new travel business and also made more of my love for photography by studying for a diploma in it. Now with covid changing the landscape of my career in travel and hospitality PR too. Grounding airlines and closing bars/restaurants. The working me has seen a huge shift in my outlook and what I do.

I’d say that’s quite a lot in 5 years wouldn’t you? So you know what? I’m going to give myself a bloody break and a pat on the back for still being relatively sane. So what if I’ve put some weight on. I’m not going to stress about that at all and in the grand scheme of things now with covid challenges too who cares?

Make a list people

So my word of advice to anyone out there is to make a list of all the things you have faced, overcome, survived and achieved in the last 5 years. I bet like me you’ll be surprised and so try to recognise what you have actually done rather than beat yourself up because of a saggy tummy, grey hairs and wrinkles. See how amazing you actually are to have got to where you are today.  What have you done, over come and experienced in the last 5 years?

Appreciate the now

I did think about doing a list for the last 18 years but that just made me feel very old and exhausted 😂maybe I will write a memoir someday to share the full story and it’ll be perfect bedtime reading (to send you all to sleep or you will think it is fiction).

Big love to you all and thanks for reading

Love sarah

Always violet skies xx

If you enjoyed this then you might also enjoy these posts –

Lost mojo and a birthday or two

Low risk isn’t no risk

Lonely child

It’s not about you

Pregnancy after loss and now PTSD

Follow my blog with Bloglovin

When you’re experiencing pregnancy after loss you expect to be stressed throughout the entire 9 months, so every scan becomes a milestone and you count down until the next scan or check happens. It has actually believe it or not become easier as time has gone on because the more positive scans and checks you have the better you start to feel too.

PTSD

What you don’t expect only 2 weeks before D Day, which for me is C day really, is to suddenly start getting horrendous nightmares that stop you sleeping.

I spoke to my GP about it and she said oh that’s post traumatic stress disorder because you’ve had two extremely stressful birth experiences previously. The closer you get to your c section date the worse these might get, not to mention the stress and grief from losing two previous children.

Great just when I thought I’d nearly done it and we were finally on the home stretch my subconscious seems to want to remind me of the previous nightmares.

WARNING anyone who is pregnant stop reading now as you don’t want to read this part, if you’re squeamish too or eating at the moment (don’t worry there are no photos)!

Previous birth experience

In my first birth experience I was induced to give birth to Violet at 37 weeks of pregnancy. They said it’d be less stressful for her, given we knew she had a heart condition and the crash team would be on standby to whisk her straight to the neonatal unit.  Unfortunately I wasn’t offered any positioning scan to check her head was definitely engaged. All the various midwives and consultants that examined me told me she was in a perfect position. We were induced on the 14th June 3 times in total and she was finally born the night of the 15th.

Undiagnosed breech

Both of us nearly died. It turned out she was undiagnosed breech and no one realised until her bottom appeared instead of her head. She was classic breach too so like a resting frog or a roast chicken with legs tucked either side because of that her legs wedged her into my pelvis so she was stuck for over 10 minutes. They eventually had to use brute force to yank her legs out then tear her out of me quite literally. The afterbirth shot out with her like a pressure cork across the room along with nearly 2 litres of my blood.

Violet wasn’t breathing when she came out. They had to resuscitate her before taking her to the neonatal unit and they had to take me into the operating theatre to repair the third degree tears caused.  Oh and did I say I was given no pain relief either, despite requesting some repeatedly for well over a day?  I now know the excruciating pain I had felt too for over a day was her toe nails and elbows scraping along my insides on her way out.

IMG_5787
Decided to insert a happy photo of me & Violet – it makes me smile!

Giving birth to my TFMR

My second birth experience wasn’t any better as this time I had to deliver Arthur sleeping at 22 weeks. We had had to make the difficult decision to terminate him due to severe medical reasons a few days earlier. Apparently I was told it would be much easier physically than birthing a larger full term baby. As he wasn’t alive I could have maximum pain relief.  I opted for diamorphine injections so got my first one when contractions began and could have another 4 hours later. So 4 hours later happened and, as they were preparing to give me more pain relief, I starting birthing him so they couldn’t continue with the injections. It was explained to me that it’d be easy to push him out as he was so small. Then all they’d do is give a little tug on the umbilical cord, once he was out, then the placenta would come away easily.

More complications

So my poor tiny sleeping baby came out and then they gave a little tug but the cord snapped. I started haemorrhaging, they hit all the alarms and the crash team rushed in. I still had no more pain relief but was told to take deep breaths while a consultant put his hand inside my womb. Yes my actual womb meaning my cervix had to open the width of a normal sized baby’s head! He manually scraped the placenta out. Then another consultant had to do the same to check they got it all. In the meantime I’d lost a litre and a half of blood. Over the next week I found myself in and out of hospital. I had infections of my womb. Extremely low iron and blood pressure. Not to mention dealing with the grief of having delivered my dead son, almost a year after we buried my daughter too.

IMG_5786
Here’s another happy photo – I actually hate my frizzy hair/no make up in this shot but her facial expression is perfection.

First step to conquering PTSD

Today I achieved the first step to get over my PTSD as we had a tour of the labour ward and operating theatres in the hospital.  It was the first time I had been back on that particular ward/area since having Violet. I broke down into tears, as I was taken right back to just over 3 years ago.  I was proud I did it. Hopefully now it will be easier for me to go back there again in a few weeks time.  Fingers crossed I will be much less stressed.

So there you have it the main reason behind my PTSD. Plus the reason why this time they are giving me a Caesarean section so just hoping this one goes smoothly because I bloody deserve it (excuse the pun & the language!).

NCT

The amusing thing is that after I had Violet the National Childbirth Trust contacted me to ask would I consider becoming a volunteer to talk to expectant mothers about my natural birth experience! I said I didn’t think that’d be a good idea, as they would have nightmares, not realising at the time that it would be me having them.

Childbirth and PTSD

Not many people talk about PTSD from childbirth experience so I wanted to share in the hope others come forward or feel less alone.  I know the vast majority of people have relatively straightforward birth experiences and I don’t want to scare anyone. No one really supports those that go through horrendous ones. I felt I should share my stories in the hope others feel they can share theirs.

I have now been offered help in dealing with my PTSD but the treatment isn’t advised when you’re pregnant so they will work with me on it in a few months.

Thanks for the love

Sarah

Always Violet Skies x

Pregnancy talk

Follow my blog with Bloglovin

I’m now heavily pregnant so that means that strangers and anyone I meet can tell instantly that I am with child, which is fine I’m happy to talk about it. 

Is it your first?

The difficulty comes when they ask if it is my first pregnancy and I have a policy of always telling the truth so when I say it is my third.  I get comments like “wow you’ve got your hands full then”, “you must really know what you’re doing”, “you’re a glutton for punishment” and “are your other two excited about their little brother or sister”.

IMG_2279
A photo I took of a mother with her two children paddling in the sea in Morocco

Try to move conversation on

Often I let them make a comment and then I move the conversation on without having to tell them that neither of this baby’s siblings are alive.  Occasionally the person I’m talking to will bring the conversation back around again by asking what my existing two children are? Are they boys or girls?  Then I have to explain that they were one of each but unfortunately they are no longer with us. I’m sure they would have been excited to have a little brother or sister.

What happened to your first two?

They then usually ask me what happened to my first two children and I tell them honestly or they nervously say “I’m so sorry” to which I answer “it’s ok” when clearly it isn’t then the conversation moves on.

IMG_5620

Third time lucky?

People often tell me “oh hopefully this one will be third time lucky then” and I know this comes from a very good place filled with love. I know we were very unlucky to have had the situation with Arthur but I don’t feel we were unlucky to have had Violet.  I know we were extremely fortunate to have known such a special little person if only for 15 months.  We were very unlucky to have lost her but would happily repeat the time over again and again in the style of Groundhog day if we could – well maybe not the very last 6 hours or 10 days in hospital!

IMG_5621
Here’s Violet having a showdown of attitude with her bigger cousin Evelyn.  Sometimes I wonder what she’d have been like as a sister.

It makes being pregnant bittersweet and we are simply hoping this time to have a stress free birth experience too, as with Violet bless her we certainly had a lot of drama.

Love Sarah

Always Violet Skies x

Our second rainbow

Follow my blog with Bloglovin

This was the best kept secret, until recently, as anyone can testify if they have bumped into me. At 34 weeks pregnant with my third pregnancy I’m now pretty big.

IMG_7445

Not very honest

Those of you who regularly read my blog you will know that I like to write in a very honest and frank way. I apologise if I haven’t been forthcoming about this massive development in my life. I hope that after reading this post you can understand why.

Third pregnancy

We were lucky enough to fall pregnant again with our second rainbow pretty soon after the loss of our baby Arthur. Unfortunately were told that there would be a 50/50 chance of the new baby having similar brain issues, as it’s older brother. We wouldn’t know if it had these issues until the 20 week scan.  So we would have to wait 5 months until we knew if our pregnancy would be viable or not.

The scans

In the meantime we were of course offered additional scans so we had one at 7 weeks, 12 weeks and another at 16 weeks where they checked baby’s heart.  At the 16-week check we discovered that unlike Violet’s heart the new baby’s heart was perfectly formed. We had received this news about Arthur’s heart at 16-weeks too.  So although it was good news we weren’t celebrating yet.

83439030-4110-49b4-ba5c-8e7fd037b0fd
Baby at 12 week scan

Arthur’s scan

I remember after our 16-week scan with Arthur we had been so happy that his heart was ok. We felt so lucky, relieved and excited we told friends and family we were pregnant.  Everyone of course was delighted for us, especially after the loss of Violet. Then after Arthur’s 20-week scan we got the devastating news about his severe brain condition and our entire world collapsed.

Kept this one quiet

For this very reason we refrained from telling our close friends about the new pregnancy until after our 20 week scan.  This scan turned out to be the very first 20 week scan we have ever had that hasn’t resulted in us being pulled into a separate room. To be spoken to by specialists and midwife counsellors.  The first 20-week scan we have had that hasn’t resulted in us having to have a second follow up scan with a more senior specialist a week later. 

So when the two specialists that performed our 20-week scan told us the baby was perfectly healthy we didn’t know what to say.  We were in total shock.  We were asked if we had any questions and all we could think of was “what do we do now?” We were told we could leave and come back for another scan with a specialist at 28 weeks.

0956ad07-a134-4e61-b3ba-009dd5f68491
Baby at 20 weeks refusing to have a photo taken turning away!

A mistake?

Since then we have been waiting for a phone call or letter from the hospital to say that they are sorry but they have made a mistake.  We had the second specialist scan at 28 weeks and again we prepared ourselves for the knock out punch. That didn’t come, again we were given positive news.  To anyone reading this we must sound ungrateful. We were just so used to being given bad news whether it was devastating or minor bad news that we almost couldn’t believe what we were hearing.

More scans

We currently have a minimum of one baby or pregnancy related appointment each week. Either to monitor my heart (as I have an ASD see my post about a broken heart). To check baby’s growth (the amazing Tommy’s clinic gives us a scan every 3 weeks). Child loss counseling or midwife appointments.  I’m under so many different departments and teams that we have gone from having an horrendous level of obstetric care when we had Violet to now having lots of specialists who all know who we are and will give us priority level care.  The NHS now feels like it is working for us!

638f4c83-e757-4c0c-bbbf-5685245c536d
With my sister at the baby shower she & my sister-in-law kindly organised for me

Trying to be hopeful

I’ve recently been to a few different Manchester events and I’ve bumped into so many people now that I think most know about our impending arrival.  People constantly ask me whether I’m excited about the new baby. The truthful answer is simply that I will be relieved when baby is here safe and well, when I can see with my own eyes.  Until then I can only try to be hopeful for the future.

Thanks for reading.

Sarah

Always Violet Skies x

When baby news upsets me

Follow my blog with Bloglovin

I was so excited to meet my brand new nephew yesterday who is absolutely gorgeous and I’m so pleased to see my beautiful sister healthy too. Friends I spoke to afterwards were concerned about it upsetting me and contacted me to check I was ok. It is lovely of them to care but prompted me to write this…

Baby news

After having lost my little girl at 15 months and then a baby boy that never made it to full term, bless him, people seem to think that I’ll get upset if they announce a pregnancy or the birth of their new baby.

Smiling
Violet at approx 10 weeks old

I have gotten upset occasionally. Usually if the baby boy was born close to Arthur’s due date and/or been given the same name but even this doesn’t last very long at all.

Happy news

I’m always happy whenever someone announces a pregnancy that’s healthy. Or the birth of a new baby, especially if it’s a close friend or family member. I love to see other people happy and there are always baby cuddles available.

Arthur scan
Arthur at 16 weeks of pregnancy

Sad baby news

What really upsets me is when I watch the news and hear of a baby or child that has been abused or murdered by their parents or family. That is what I find really upsetting, we’d give anything to have our daughter or son healthy and with us. When I read that someone has actually intentionally injured or killed his or her own child I find it abhorrent. That is the baby news that really upsets me and makes me so angry.

Violet & Arthur

Our daughter was so well looked after yet she still got sick and died, from we think a lung disease. My son had severe brain damage, yet I looked after myself in pregnancy, didn’t drink, smoke or do any drugs other than a pregnancy multivitamin! When I see pregnant women smoking and drinking alcohol that upsets me. Women chain smoking, blowing smoke over a pram and toddler that angers me too. Violet was never exposed to cigarette smoke. I feel sorry for children that are. I want to shake their parents to say “do you know what it would be like if your child died?” That is when I get upset about someone else’s baby or child.

Thanks for caring about us though. We really appreciate it when people are so thoughtful to let us know about pregnancies, new babies etc before they then announce it publicly. It is lovely to know you all care and are still thinking of us.  Thank you.

Love Sarah x

Always Violet Skies

You might be interested in these posts –

My story

Making over motherhood