Pregnancy after loss and now PTSD

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When you’re experiencing pregnancy after loss you expect to be stressed throughout the entire 9 months, so every scan becomes a milestone and you count down until the next scan or check happens. It has actually believe it or not become easier as time has gone on because the more positive scans and checks you have the better you start to feel too.

PTSD

What you don’t expect only 2 weeks before D Day, which for me is C day really, is to suddenly start getting horrendous nightmares that stop you sleeping.

I spoke to my GP about it and she said oh that’s post traumatic stress disorder because you’ve had two extremely stressful birth experiences previously. The closer you get to your c section date the worse these might get, not to mention the stress and grief from losing two previous children.

Great just when I thought I’d nearly done it and we were finally on the home stretch my subconscious seems to want to remind me of the previous nightmares.

WARNING anyone who is pregnant stop reading now as you don’t want to read this part, if you’re squeamish too or eating at the moment (don’t worry there are no photos)!

Previous birth experience

In my first birth experience I was induced to give birth to Violet at 37 weeks of pregnancy. They said it’d be less stressful for her, given we knew she had a heart condition and the crash team would be on standby to whisk her straight to the neonatal unit.  Unfortunately I wasn’t offered any positioning scan to check her head was definitely engaged. All the various midwives and consultants that examined me told me she was in a perfect position. We were induced on the 14th June 3 times in total and she was finally born the night of the 15th.

Undiagnosed breech

Both of us nearly died. It turned out she was undiagnosed breech and no one realised until her bottom appeared instead of her head. She was classic breach too so like a resting frog or a roast chicken with legs tucked either side because of that her legs wedged her into my pelvis so she was stuck for over 10 minutes. They eventually had to use brute force to yank her legs out then tear her out of me quite literally. The afterbirth shot out with her like a pressure cork across the room along with nearly 2 litres of my blood.

Violet wasn’t breathing when she came out. They had to resuscitate her before taking her to the neonatal unit and they had to take me into the operating theatre to repair the third degree tears caused.  Oh and did I say I was given no pain relief either, despite requesting some repeatedly for well over a day?  I now know the excruciating pain I had felt too for over a day was her toe nails and elbows scraping along my insides on her way out.

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Decided to insert a happy photo of me & Violet – it makes me smile!

Giving birth to my TFMR

My second birth experience wasn’t any better as this time I had to deliver Arthur sleeping at 22 weeks. We had had to make the difficult decision to terminate him due to severe medical reasons a few days earlier. Apparently I was told it would be much easier physically than birthing a larger full term baby. As he wasn’t alive I could have maximum pain relief.  I opted for diamorphine injections so got my first one when contractions began and could have another 4 hours later. So 4 hours later happened and, as they were preparing to give me more pain relief, I starting birthing him so they couldn’t continue with the injections. It was explained to me that it’d be easy to push him out as he was so small. Then all they’d do is give a little tug on the umbilical cord, once he was out, then the placenta would come away easily.

More complications

So my poor tiny sleeping baby came out and then they gave a little tug but the cord snapped. I started haemorrhaging, they hit all the alarms and the crash team rushed in. I still had no more pain relief but was told to take deep breaths while a consultant put his hand inside my womb. Yes my actual womb meaning my cervix had to open the width of a normal sized baby’s head! He manually scraped the placenta out. Then another consultant had to do the same to check they got it all. In the meantime I’d lost a litre and a half of blood. Over the next week I found myself in and out of hospital. I had infections of my womb. Extremely low iron and blood pressure. Not to mention dealing with the grief of having delivered my dead son, almost a year after we buried my daughter too.

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Here’s another happy photo – I actually hate my frizzy hair/no make up in this shot but her facial expression is perfection.

First step to conquering PTSD

Today I achieved the first step to get over my PTSD as we had a tour of the labour ward and operating theatres in the hospital.  It was the first time I had been back on that particular ward/area since having Violet. I broke down into tears, as I was taken right back to just over 3 years ago.  I was proud I did it. Hopefully now it will be easier for me to go back there again in a few weeks time.  Fingers crossed I will be much less stressed.

So there you have it the main reason behind my PTSD. Plus the reason why this time they are giving me a Caesarean section so just hoping this one goes smoothly because I bloody deserve it (excuse the pun & the language!).

NCT

The amusing thing is that after I had Violet the National Childbirth Trust contacted me to ask would I consider becoming a volunteer to talk to expectant mothers about my natural birth experience! I said I didn’t think that’d be a good idea, as they would have nightmares, not realising at the time that it would be me having them.

Childbirth and PTSD

Not many people talk about PTSD from childbirth experience so I wanted to share in the hope others come forward or feel less alone.  I know the vast majority of people have relatively straightforward birth experiences and I don’t want to scare anyone. No one really supports those that go through horrendous ones. I felt I should share my stories in the hope others feel they can share theirs.

I have now been offered help in dealing with my PTSD but the treatment isn’t advised when you’re pregnant so they will work with me on it in a few months.

Thanks for the love

Sarah

Always Violet Skies x

Pregnancy talk

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I’m now heavily pregnant so that means that strangers and anyone I meet can tell instantly that I am with child, which is fine I’m happy to talk about it. 

Is it your first?

The difficulty comes when they ask if it is my first pregnancy and I have a policy of always telling the truth so when I say it is my third.  I get comments like “wow you’ve got your hands full then”, “you must really know what you’re doing”, “you’re a glutton for punishment” and “are your other two excited about their little brother or sister”.

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A photo I took of a mother with her two children paddling in the sea in Morocco

Try to move conversation on

Often I let them make a comment and then I move the conversation on without having to tell them that neither of this baby’s siblings are alive.  Occasionally the person I’m talking to will bring the conversation back around again by asking what my existing two children are? Are they boys or girls?  Then I have to explain that they were one of each but unfortunately they are no longer with us. I’m sure they would have been excited to have a little brother or sister.

What happened to your first two?

They then usually ask me what happened to my first two children and I tell them honestly or they nervously say “I’m so sorry” to which I answer “it’s ok” when clearly it isn’t then the conversation moves on.

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Third time lucky?

People often tell me “oh hopefully this one will be third time lucky then” and I know this comes from a very good place filled with love. I know we were very unlucky to have had the situation with Arthur but I don’t feel we were unlucky to have had Violet.  I know we were extremely fortunate to have known such a special little person if only for 15 months.  We were very unlucky to have lost her but would happily repeat the time over again and again in the style of Groundhog day if we could – well maybe not the very last 6 hours or 10 days in hospital!

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Here’s Violet having a showdown of attitude with her bigger cousin Evelyn.  Sometimes I wonder what she’d have been like as a sister.

It makes being pregnant bittersweet and we are simply hoping this time to have a stress free birth experience too, as with Violet bless her we certainly had a lot of drama.

Love Sarah

Always Violet Skies x

Our second rainbow

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This was the best kept secret, until recently, as anyone can testify if they have bumped into me. At 34 weeks pregnant with my third pregnancy I’m now pretty big.

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Not very honest

Those of you who regularly read my blog you will know that I like to write in a very honest and frank way. I apologise if I haven’t been forthcoming about this massive development in my life. I hope that after reading this post you can understand why.

Third pregnancy

We were lucky enough to fall pregnant again with our second rainbow pretty soon after the loss of our baby Arthur. Unfortunately were told that there would be a 50/50 chance of the new baby having similar brain issues, as it’s older brother. We wouldn’t know if it had these issues until the 20 week scan.  So we would have to wait 5 months until we knew if our pregnancy would be viable or not.

The scans

In the meantime we were of course offered additional scans so we had one at 7 weeks, 12 weeks and another at 16 weeks where they checked baby’s heart.  At the 16-week check we discovered that unlike Violet’s heart the new baby’s heart was perfectly formed. We had received this news about Arthur’s heart at 16-weeks too.  So although it was good news we weren’t celebrating yet.

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Baby at 12 week scan

Arthur’s scan

I remember after our 16-week scan with Arthur we had been so happy that his heart was ok. We felt so lucky, relieved and excited we told friends and family we were pregnant.  Everyone of course was delighted for us, especially after the loss of Violet. Then after Arthur’s 20-week scan we got the devastating news about his severe brain condition and our entire world collapsed.

Kept this one quiet

For this very reason we refrained from telling our close friends about the new pregnancy until after our 20 week scan.  This scan turned out to be the very first 20 week scan we have ever had that hasn’t resulted in us being pulled into a separate room. To be spoken to by specialists and midwife counsellors.  The first 20-week scan we have had that hasn’t resulted in us having to have a second follow up scan with a more senior specialist a week later. 

So when the two specialists that performed our 20-week scan told us the baby was perfectly healthy we didn’t know what to say.  We were in total shock.  We were asked if we had any questions and all we could think of was “what do we do now?” We were told we could leave and come back for another scan with a specialist at 28 weeks.

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Baby at 20 weeks refusing to have a photo taken turning away!

A mistake?

Since then we have been waiting for a phone call or letter from the hospital to say that they are sorry but they have made a mistake.  We had the second specialist scan at 28 weeks and again we prepared ourselves for the knock out punch. That didn’t come, again we were given positive news.  To anyone reading this we must sound ungrateful. We were just so used to being given bad news whether it was devastating or minor bad news that we almost couldn’t believe what we were hearing.

More scans

We currently have a minimum of one baby or pregnancy related appointment each week. Either to monitor my heart (as I have an ASD see my post about a broken heart). To check baby’s growth (the amazing Tommy’s clinic gives us a scan every 3 weeks). Child loss counseling or midwife appointments.  I’m under so many different departments and teams that we have gone from having an horrendous level of obstetric care when we had Violet to now having lots of specialists who all know who we are and will give us priority level care.  The NHS now feels like it is working for us!

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With my sister at the baby shower she & my sister-in-law kindly organised for me

Trying to be hopeful

I’ve recently been to a few different Manchester events and I’ve bumped into so many people now that I think most know about our impending arrival.  People constantly ask me whether I’m excited about the new baby. The truthful answer is simply that I will be relieved when baby is here safe and well, when I can see with my own eyes.  Until then I can only try to be hopeful for the future.

Thanks for reading.

Sarah

Always Violet Skies x

Violet’s third birthday

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Last week was a hard week for us as it was our daughter’s third birthday. Along with the happy memories we also had memories of her difficult birth, where both of us nearly died, and the memory of her having heart surgery too.

Violet at Alder Hey
When she was at Alder Hey in intensive care, when we couldn’t hold her she held our fingers & later on in her life she took comfort from holding hands.

First 10 days in hospitals

This time three years ago she spent her first 10 days in various NICU wards, at St Mary’s hospital first before she was transferred to Alder Hey hospital. In Liverpool she had open-heart surgery at just 4 days old. 

We had to sign a million legal forms and contracts saying we knew the odds were stacked against her.  That we knew she might not survive and return alive from the operating theatre.   And that if she did there was a chance of brain damage; disabilities and the heart problem might not be “fixed”.  We also knew her chance of survival without the operation was nil. She was only alive because of the additional hormones and support she was being given.

Off for heart surgery at 4 days old

I still remember the day she went off to the operating theatre that morning was only the second time I had actually held my daughter in the four days since her birth. The first time being the day after she was born just before she left St Mary’s Hospital in an ambulance for Alder Hey, with her daddy in a taxi in hot pursuit. We didn’t want her to be alone without at least one of us.  I had to remain in St Mary’s because of all the injuries I sustained during labour and as soon as I could I was discharged to head over to Liverpool.

Me & Violet at Alder Hey
The second time I held her just before her heart operation

We told her about exciting plans

The days before her operation and the hours before it we spent time talking to her about what we were going to do together once she was out of the hospital.  We chatted about all the different people she would meet, describing friends and family members to her in detail.  We spoke about all the places we would take her to including New Zealand to see her Uncle Tom. Cyprus to see her Aunty Mel and Bali for mummy & daddy’s honeymoon.  We chatted about her Grandma and Nanna.  Said she would learn to swim. 

We basically described to her then the life she ended up having crammed into a 15-month period.  I wish I had have mentioned university and her own children to her then perhaps she’d have stayed around for longer!

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Violet in Cyprus in April 2016

The journey to operating theatre

When they took her down to the operating theatre I couldn’t watch. I knew I would end up screaming and it would distress Violet, so instead I collapsed onto the floor of the nearby family room sobbing.  Her brave daddy on the other hand walked her down to the operating theatre. Talking calming to her the whole time reassuring her. Reminding her how much she was loved. How strong she was and that she could do this.

Violet & daddy in Alder Hey
The bond between father & daughter was strong from day one

Then we waited for an eternity

Then commenced the longest 8 hours of our life as we hung around the hospital waiting for a phone call. We finally received it saying she was out and still alive! We were so relieved but our hearts sank when we returned to the NICU ward to be told that the specialist team wanted to speak to us before we saw her.  We thought oh no this is where we get told something bad has happened. We were told the opposite that the surgeon thought it was an 100% success. He felt she wouldn’t need any other operations on that part of her heart again ever. 

You know what we discovered he was 100% right too, as her post mortem showed his operation was a permanent fix.   This is the reason we are fundraising in her name for Alder Hey. So superstar surgeons can continue to work their magic on baby’s that are told they only have a slim chance of survival.

Now it feels like a story

Last week these memories all felt like it was someone else’s story, as though it was a different life and it played in my mind like a feature length film.

Thoughts of ordinary things

The thing I found hardest was the realization that ordinarily I would have spent the weekend before her birthday preparing for it. Buying her gifts, cards and organizing a birthday party for her.  Then the night before I’d have been putting an excited little girl to bed and wrapping her presents to set up for the morning.

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Here she’s opening first birthday presents & getting excited about bows!

Party and gift planning

This year instead of planning her party the weekend before I focused on doing some planning for the Violet Ball to be held in her memory on 29thSeptember to raise money for Alder Hey to thank them for saving her life at 4 days old. 

Instead of wrapping her presents the night before her birthday we decided to make up little “Random act of kindness” parcels containing little packets of sweets, including Parma Violets. Then on her birthday we distributed them all around the area where we live.  Including taking some to her nursery. Leaving some on the benches near the playgrounds in the local parks where she loved the swings. We left some near the mural on Beech Road that has a violet coloured balloon in her memory. Some near to where she attended Babel Baby classes. We placed some on benches in the cemetery close to her grave, after we took her birthday balloons.

The challenge now will be deciding what we do next year for her fourth birthday? Please let us know your ideas as all will be considered.

Thanks for reading

Love

Sarah

Always Violet Skies xx

Travel – A few days in Switzerland

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I’m not a stranger to travelling alone having worked as a PR for travel clients I have travelled all over the world on my own so when a friend who was working in Switzerland invited me over for the weekend I jumped at the chance.

Basil and Zurich

I got a cheap flight to Basil from Manchester and then got the train to meet my friend in Zurich.  I’d been to Zurich before as I used to have a Swiss client but I had only actually experienced it in torrential rain looking grey and miserable.  It was great to see the place flooded in bright sunshine and we walked around the beautiful old town and by the river.  It was stunning.

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Villa Honegg hotel spa

Early the following morning we got the first of many train journeys to visit one of the world’s best spas inside Villa Honegg Hotel in Ennetburgen.

It truly was one of the most breathtaking spas I have been to with a giant outdoor hot pool that looked out over the Swiss Alps and Lake Lucerne.  It helped that we had glorious sunshine and a cool breeze that came down from the snow capped mountains.  The spa is sat on the side of a hill that was surrounded by farmland lower down and flower filled meadows in front of it.  Inside the spa there was an indoor spa pool and sauna facilities too.

The hotel had a restaurant that overlooked the spa with an outside terraced area so we ate lunch there with again stunning mountain views before we departed for the train station once again to continue our journey this time several hours travel to Interlaken.

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Airbnb in Interlaken

Interlaken can be described as the tourist centre of Switzerland with coach loads of Chinese, Korean and American tourists arriving into the town in order to explore the nearby sights.  We even noticed they have a Hooters bar to satisfy our friends from across the pond. The town offered a vast choice of accommodation including high end hotels and back packing hostels.  We decided to book an AirBNB apartment as we were only staying for one night – would be arriving late and leaving early the next morning.  The split level studio apartment was to a contemporary loft design, owned by the artists running the nearby modern art gallery, and was practical and functional with what we needed for a one night stay.

Jung Frau

The following morning we headed again by train to climb Jung Frau the highest mountain in Europe.  We stopped off in Grindelwald a very stunning Alpine town half way to Jung Frau that sounded like it belonged in a Harry Potter book.  It is used as a base for hikers and skiing enthusiasts.  It was breathtaking surrounded by snow-capped mountains.  I could happily come back here to stay for a few days and enjoy the mountain air. Apparently this was the place Heidi was filmed.

Grindelwald

We only stayed in Grindelwald for a quick coffee and then continued our journey up Jung Frau by train on the highest train line and ultimately train station in Europe.  The sun was still shining so when we hit the snowy surrounds I was relieved to have my sunglasses.  This was the most scenic train journey I have ever been on, absolutely stunning views from every direction and we climbed so high our ears reacted as they do on a plane. Once we reached Jungfrau station we then had to continue on foot to the Sphinx observatory, the highest point in Europe and it was truly spectacular.  My friend even stripped off her layers as the suns reflection on the deep snow was so warming.  Some of you James Bond fans may recognize the setting here as it was featured in Her Majesty’s Secret Service.

Lauterbrunnen

On our way back down the mountain we stopped off in Lauterbrunnen another pretty village this time it is one with stunning waterfalls where we enjoyed some dinner and chatted to some Australian tourists (yes they get everywhere!) before heading back on the train to Zurich via Lucerne.

Cham on Lake Zug

The following day I enjoyed a leisurely lunch in Villa Villette in Cham on the banks of Lake Zug before catching the train back to the airport for my flight home.

Switzerland Travel tips

Flights – I flew to Basil from Manchester with Easyjet however the trains are so efficient in Switzerland that it could be cheaper to research travel into various different airports.

Train – I recommend you purchase a Swiss rail pass if you plan to travel around as we did as this as it is the most cost effective way to travel.

Luggage – there are inexpensive luggage lockers in most train stations in Switzerland so you can leave items as you travel to collect as you pass through the main hub stations to collect on way back.

Accommodation – there’s a wide choice of accommodation in Switzerland but if like us you simply need a bed for the night then take a look at sites such as AirBNB that can be more cost effective saving more money to spend on 5 class spas!

Happy travels!

Love Sarah

Always Violet Skies x

Surviving after Child Loss

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Whilst I was sat on a train heading to Glasgow earlier this week I decided to write a few blog posts touching on subjects people have been curious about.

How do you cope with losing a child?

People often ask me about how we coped with losing Violet and about the techniques we employed to try to help ourselves get through this time.

Force yourself to do things

We tried to remember what we enjoyed about life when our daughter was still with us. We focused on making ourselves do these things even though we didn’t want to and certainly didn’t have the motivation.

It all began with us still going on a mini-break to the Lake District only a few weeks after she had died.  A break we had already planned and paid for when our daughter was still alive.  That trip was an extremely hard one for us and we only stayed there for the bare minimum of time. 

We also had lunch at L’Enclume that I had arranged as a belated birthday surprise for my hubby months earlier.  We just went through the motions and returned home early on the final day as we felt lost.

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Cartmel, Lake District

What did you enjoy before?

The things we had enjoyed doing as a family trio were travel. Violet was a true jetsetter and travelled more in her short life then many adults do in theirs. We also liked dining out in new places. 

Admittedly the fondness for dining out was more mine and my hubby’s as Violet disliked food although she did enjoy people watching.  She was always good as gold too preferring to use high chairs to rest her books on for reading. She often got praised by staff for how clean and well behaved she was.    

I work in travel and hospitality PR so my work has always channeled my passion but I felt as though this love had disappeared with Violet.

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Violet watching the Snoopy film on the flight to New Zealand at 7 months old

After the initial Lake District trip we continued to make sure we planned and booked other things in advance. Then we had less chance of being able to back out and change our minds at the last minute.  Don’t get me wrong there were quite a few dinner reservations we made and then couldn’t be bothered going to. Or arrangements with friends we had to back out of as we simply couldn’t face it.

Remember to mark anniversaries

We jointly decided that we should focus on ensuring, despite our misery, that we booked restaurants or mini-breaks for anniversaries and birthdays.  We encouraged each other to make an effort to keep the reservation. We often found that only one of us would wobble and want to back out of plans.  So we worked as a team to persuade each other knowing that it was for the best in the long run.

Book things in advance

We planned trips to places we had already wanted to visit but only for a few days at a time. We knew a big trip would be too much for us.  Places like Florence in Italy for Valentine’s day. Bilbao in Spain to visit the Guggenheim. Montenegro to escape for Violet’s anniversary. Morocco to escape Arthur’s due date etc.

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Sunset in Bilbao, Spain

Slowly but surely after nearly 2 years I can now talk again about travel being a passion of mine without instantly feeling guilty about it. Now I realise that this was also a passion of my daughters and something she would still relish if she was alive today.  I also embraced a new hobby for photography, especially landscape and architecture.  All the photos in this blog are mine.

Always a work in progress

I’ve not yet gotten there with the dining out thing. I’m still fond of food and work in hospitality however we don’t dine out as a couple anywhere near as much as we used to.   I know in time we will and this will be easier too. 

To the “friend” that said to us after Violet died “well at least you can now travel whenever you like and dine out whenever you like”. Well we did travel and dine whenever we liked with Violet. She loved it and we can nearly do this again without pangs of guilt and imagining what she’d have thought of it/been like in these places. Every day is tough.  It’s not as easy as “at least you don’t have to arrange a babysitter” that we’re constantly told by people.

Hang in there with everything in life some things take practice.

Love Sarah

Always Violet Skies x

Somewhere after the rainbow

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Everyone talks about “rainbow” pregnancies and what a blessing they are.

Joy of a rainbow

It is very true that when we were expecting Arthur we were overjoyed and all of a sudden we had a new lease of life.  We had hope for our future, as a family and truly believed the sun was shining on us again.

Optimism for future

Yes we were still immensely sad about Violet and our grief for her was still strong but we had a renewed sense of optimism towards the future especially after we had Arthur’s 16 week scan and they confirmed that unlike Violet’s his heart looked ok.  We were ecstatic and so relieved that we genuinely looked forward to his 20 week scan as they would double check his heart again in more detail but if there were any slight abnormalities then they would be minor.

Arthur scan

Finally announced our pregnancy

We were so pleased and reassured by his 16 week scan results that we even felt confident enough to let friends and others know we were now expecting.  That in January 2018 Violet was going to be a big sister.

Bad news at 20 weeks

Then we had the 20-week scan.  Arthur’s heart did still look ok but what didn’t look right was his brain.  The sonographer wouldn’t/couldn’t tell us too much other than his brain didn’t look how it was supposed to look and she would have to refer us to a top specialist.  Our world crumbled.  We then had to wait over a week before we could see a specialist to get more details.

Heart broken again

We were heartbroken. The fact that something might have been wrong with his brain hadn’t even dawned on us, as we almost expected a heart defect and as we knew from our experience with Violet that wouldn’t necessarily have been a deal breaker as a heart can be fixed but a brain?  The interim week waiting to see the specialist was one of the longest in our lives and in the meantime I could feel little Arthur kicking and wriggling around much more hyperactive than Violet had been.

You can’t repair a brain

When we finally saw the specialist he explained that Arthur’s brain had declined and become even more severe, just in the week since our previous scan.  The issue was the amount of fluid in his brain, which was already so vast it had crushed most remaining parts of the brain including the area responsible for reflex and animal impulses like breathing and swallowing. The increased movement from Arthur was put down to the nerves being over stimulated by the fluid sloshing around his brain. 

His symptoms weren’t even anywhere near the borderline and in fact he was so beyond this that the prognosis was that he might at best reach 30 weeks of pregnancy and then would die.  His head would be so large and full of fluid that he wouldn’t be able to be birthed and would have to be removed through caesarean section, which could have complications for me too and given my age we were told if we still wanted other children then losing him earlier would be the kindest option for everyone.

TFMR

We explored every alternative but I couldn’t bear the thought of my little boy suffering (incidentally his deformity had affected him so badly that they couldn’t even identify his gender through the scan) and it wasn’t until I birthed him at 22 weeks that we realised he was a little boy.  Having to end his life was the hardest decision we have ever had to make but the thought of him suffering and declining further was too much to bear.

Having to give birth to him was traumatic and extremely upsetting.  We did get to meet our little boy while he still looked like a healthy but tiny baby and he was beautiful like a miniature version of his daddy with dark brown hair.  We spent several days saying goodbye to him in hospital and gave him a funeral service before burying his ashes with his sister almost a year to the day that we lost her too.

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Guilt mixed with grief

We will never forget our little boy and we miss him more than imaginable but it is a very different type of grief to that that we have over Violet. We knew her, shared experiences together, heard her laugh, babble away incessantly and have a million photos of her that we can look at too.  In a way this makes it easier as we have constant beautiful reminders of our memories of Violet.  I find I’m much angrier at the world over Violet because she had battled and overcome so much in her short life that it feels much more cruel for her to have been taken away as she was.

The world can be cruel

Grieving Arthur is much more difficult as his loss so early was our decision however his brain abnormalities weren’t and he would never have survived to full term anyway.  Never been able to breathe or swallow unaided if he had survived to full term.  It is the cruelty of us having to endure this on top of losing Violet that I find very hard to bear.  I remember screaming “how much pain do they want us to go through”, “what have we done to deserve this” and “how cruel is the world”.

After the rainbow

People talk about rainbow babies and how they are “God’s gift” well Arthur did fill us with hope for the future before it was cruelly ripped from us again.  I’m often asked why I don’t believe in God and this is the reason why.

Now we are struggling to discover what there is “somewhere over the rainbow” or as I like to say we are somewhere after the rainbow; what happens when you’ve had a rainbow and it is faded and disappeared?

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We look for the next one I guess and try to keep positive.

Lots of love

Sarah

Always Violet Skies x

Anniversaries of loss

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Anniversaries after loss are always really hard for all those family & friends who were close to the loved one.

Commemoration

Talking from experience it really does help when others remember our cherished one on this day and when they commemorate their memory in some way, it reassures us that their legacy will live on.

Bee mural

Never forgotten

Our worst fear is that our much loved child, brother, sister, mum, dad, family member or friend is forgotten so today take the time, observe the silence at 2.30pm today, light a candle, say a prayer or just give a thought to all those who lost their lives in the Manchester bomb last year and know by doing that you are fulfilling the wish of their families and friends in that they are not forgotten.

We will not forget them. Bee strong everyone. 💜🐝

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The Light at the end of the Tunnel?

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Well we’re very nearly there as this week hopefully our nearly two year long battle for answers about what happened to our daughter Violet and caused her untimely death will come to the fore.

Inquest

Ever since she died suddenly on 26th September 2016 we have been chasing hospitals, lodging complaints, hounding for the release of medical records, researching the strange medical terminology and random disease mentions that appear in her post mortem report and waiting for the coroner to finally set a date for the inquest hearing. Finally after over 18 months we got a date and it is this week.

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Will this be the light at the end of our tunnel?  (photos taken beneath a glacier in Iceland)

AvMA

Fortunately a legal charity called AvMA have now agreed to support us with a barrister to act as our mouthpiece during the hearing and she will ask questions on our behalf. We are so relieved about this as were dreading having to question witnesses ourselves. She has also offered to read out my witness statement on my behalf and this has lifted a lot of my dread, as I was worried it would be too traumatic to stand and relive these moments in the courtroom although I know some parents can find this somewhat cathartic.

Questions for barristers

My husband and I spent time this weekend drafting questions for our barrister that we would ideally like to be addressed and it is traumatic thinking again about our precious daughter’s last days and moments. Running through all the “what ifs” in our heads that we know may or may not be answered with any certainty.

Violet on 26th Sept 2016

Stress and worry

The stress and worry about this week has actually given me a mental block to my writing so apologies for no recent insightful blog posts.

I do have lots of lovely more uplifting things to write about and post, involving travel to amazing places but at the moment these seem too trivial and frivolous to me to be able to focus on when we have more serious emotional events looming.

Stay tuned and I’ll hopefully be able to check in with you all in a week’s time having discovered the light at the end of the tunnel.

Love Sarah

Always Violet Skies x

Delivering good news

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Pregnancy news

Delivering the wonderful news that you are expecting a baby is usually a happy time and I’ve seen people make announcements in the most creative ways via social media. Including an older sibling announcing they are going to be a big brother or sister, a written sign in front of a pet dog, a cutesy family cartoon and even an eviction notice on the side of an older siblings cot. There are of course those that simply post the classic 12-week scan photo with their announcement.

Arthur scan
Arthur’s scan photo

Baby news can be a kick in the teeth

For those of us who have lost babies, or perhaps are struggling to conceive a much desired baby, seeing these posts can feel like a real kick in the teeth or like rubbing salt into our open wounds. Of course we are delighted by the announcement and pleased that someone else, a friend or family member, has good news to announce but it still stings.

Violet in Children's hospital MCR
Violet in hospital

Personal rather than social media

We have some friends who kindly contacted us first to tell us personally about their news before they then announced it on social media and I felt this was an extremely kind gesture. If you have anyone in your circle of friends or in your family who have struggled to conceive or have had a baby die or have lost an older child, then please think about telling them your news in person before you announce it on social media to the whole world, as they can then prepare themselves for when they see it online. They will really appreciate the kindness of you telling them in advance of a more public announcement.

FOMO

For some people baby and pregnancy announcements can bring a whole new meaning to FOMO on social media!

Be caring and considerate to any friends who have suffered loss or struggled to conceive.

Love Sarah

Always Violet Skies x