anniversary Archives · Violet Skies

Happy 6th Birthday

Happy 6th Birthday to my darling girl; the girl who made me a mummy and taught me how to be strong, even when I don’t want to be.

Today you should be excitedly opening your birthday cards and presents before school. Perhaps taking sweets or cake or fruit in for your classmates to enjoy whilst wearing your birthday girl badge.

We would have probably done you a birthday party in the back garden in the sunshine the weekend just gone. Some of your friends would have come that you have been friends with pretty much since birth, school friends too and also your amazing cousins. I bet your baby sister would have had a meltdown because she wasn’t the centre of attention for once too.

I wonder what we would have bought you for your birthday? Judging by your cousin who is seven now probably a new bike or perhaps you are still as musical as you were aged 15 months so maybe we got you a piano? Your Aunty Kate would have made you the most amazing birthday cake too.

Anyway today we will do what we have done for the last 4 birthdays and we will take birthday balloons to your grave to say happy birthday to you darling girl. This year we have sent beautiful wild flower bouquets to your Grandmothers to make them smile through their tears.

Last year we gave party bags to all of the people who have supported us since you passed with sweets, mini champers (you did like your bubbles although not the alcoholic kind) and uniquely thoughtful gifts for them to make them smile.

In the years before that we always did random acts of kindness on your birthday like taking balloons and sweets to the Children’s Hospital; delivering cakes and balloons to your old nursery and leaving token gifts of sweets all around the local area and park. Alas once again for the second year we are scuppered by COVID19. I will do some random acts of kindness in a different way so check back here to find out what they were as if I reveal all now well they won’t be random and a surprise will they?

As we always do we will donate money to various charities, including giving money for a little child your age to receive a school uniform and toys that their parents wouldn’t otherwise be able to afford. We have renewed sponsorship of a little girl your age in Africa paying for her to complete her schooling. We also renewed sponsorship of the elephants at Chester Zoo in memory of your favourite elephant toy.

Elephants at Chester Zoo — Violet’s elephants at Chester Zoo

Does anyone have any good ideas for something we can do this week?

I will also be starting the ball rolling to establish a charity in your honour to enable us to support many smaller causes and charities so we can help lots more people. It will also continue to build your legacy.

I hope we will make you proud little girl. You had such a big heart, such an appetite for life and a calm wisdom about you that was so advanced for your years.

Your little sister I know misses you even though she never got to meet you. She misses not having a sibling to share things with. She adores her cousins and whenever they visit she loves spending time with them. She shares her toys and games generously. She loves other children so I know she would love you.

Violet at her first birthday party. She loved balloons! www.violet-skies.com — Violet at her first birthday party that was also our belated wedding reception with her friend Abby. She loved balloons! http://www.violet-skies.com

Both your dad and I miss you more than you can imagine. We would do anything to have you back with us again. To have you arguing and squabbling with your sister, to watch you teaching her how to do things and to listen as you read her stories.

Sending you so much love on your birthday and wishing we could cuddle you once more.

Love always

Mummy, Daddy, Arthur (who is with you) and your baby sister Aurora

(who sang Happy Birthday to your Nanna a few days ago). xxx

Thanks for reading this and if you enjoyed it then please check out

My story

Lockdown 3.0

If you would like to donate to Violet’s fund at Alder Hey here’s the link to do so

June 15, 2021June 14, 2021 by intoleranttravelleruk Categories: anniversary, baby loss, Birthday, Broken hearted, Child bereavement, child loss, grief, Heartbreak, legacyTags: 6th birthday, babyloss, Birthday, birthday girl, Broken hearted, Child bereavement, child loss, sister Leave a comment

Chinese New Year

If you didn’t already know this weekend marks the beginning of a New Lunar Year or Chinese New Year. As someone who has worked for and with Chinese focussed companies over the years I’ve probably been interested in Chinese New Year more than most. I also have a best friend who is Chinese and another friend who grew up in Hong Kong.

Violet-Sunset-HKG-Harbour-Violet-Skies — A Violet Sunset over Hong Kong Harbour

This Chinese New Year is even more special than usual however as it also signifies the reset of the twelve year calendar cycle. The rat is just the beginning. This new twelve year cycle gives the Chinese time to reflect on the last twelve years and make bigger plans for the next twelve too.

The year of the rat therefore often sees a time of great change so its quite apt that brexit will happen in the year of the rat lets hope the sinking ship analogy doesn’t apply here too.

HKG-Harbour-Light-Show-Violet-Skies — Hong Kong Harbour during the Light Show

The last year of the rat was of course twelve years ago and it saw great change for me. I had made the decision to quit my full time job at the end of the previous pig year and by the time the rat year started I had ventured into new projects in new industries. I started work on communications for a huge sporting event, alongside one of my friends, and started working with what would be one of my favourite clients the airline Finnair. I’ve now been working with airlines for twelve years! Wow. I also ended up setting up my own agency and continued to be my own boss.

Through working for this airline and other firms at this time twelve years ago I ended up meeting some of my favourite people and made some good friends that are central in my life still today.

The last twelve years saw significant personal change too. I met my now husband and married him. I became a mother 3 times. Unfortunately I lost my daughter and a son but we still have a little rainbow daughter keeping us on our toes.

I bought a house in Cyprus (you can rent it here) and a family home with the hubby too that we have been renovating. I’ve circumnavigated the earth more than 3 times visiting friends and family all over the planet. I’ve been privileged to explore new cultures and places.

I started a blog about childloss to try to help others and I’ve raised over £40k for Charity.

I finally finished the twelve year cycle by undergoing an operation to fix my heart, which thankfully seems to have been successful so now I begin a new 12 year cycle with a newly refurbished ticker!

I don’t know about you but I feel exhausted reading all of the highlights that have happened in twelve years 😂 interesting though to realise that the biggest shift career wise for me happened exactly at the start of the twelve year cycle shift. I hadn’t realised that until this weekend.

Red-Lanterns-CNY-HKG-Violet-Skies — Lucky red lanterns in Hong Kong

Here’s hoping any changes we all go through at the start of this rat year and brand new cycle are positive ones that work out for the best in the end so that by the end of the next twelve year cycle we can look back to see all that has been achieved then realise the effort was worth it after all.

I’m personally hoping for a slightly more peaceful and less dramatic twelve years but let’s see what happens. My life seems to have been non stop drama in the past twelve.

There’s also been a significant shift already in my professional life as I’ve started lecturing at university opening up a new avenue career wise alongside my consultancy business. I wonder what else this year will see, perhaps more opportunities.

Anyway no matter what animal or symbol you are in the Chinese zodiac here’s hoping the next year or twelve are good ones for you all.

Chinese-Lion-CNY-Violet-Skies — Chinese Lion Dancers outside the Yang Sing

Love Sarah

Always Violet Skies xx

If you enjoyed reading this you might also be interested in these articles –

Reflections on the decade that was…

September = New Beginnings

Due Date Anniversary

Also check out my gallery of photos from my travels to Hong Kong here too –

Hong Kong photos

January 26, 2020January 26, 2020 by intoleranttravelleruk Categories: anniversary, baby loss, UncategorizedTags: anniversary, china, chinese new year, cny, hong kong, New Year, new year resolution, pig, rat, travel Leave a comment

Due Date Anniversary

So today in 2018 was our son Arthur’s due date but he was born sleeping on 1^stSeptember 2017. I don’t therefore know what you call today “a scheduled birthday that should have been”??? A Due Date Anniversary?

Confused situation

It feels odd being sad today because if all had gone to plan and he had been born today happy and healthy then we wouldn’t have our little girl Aurora as she was also born later on in 2018.

It is a confused situation entirely. Arthur doesn’t even legally exist as he was born sleeping at 22 weeks old so 2 weeks earlier than the legal requirement for human life however if he had drawn a breath at birth than he would have lived so then would have a birth and death certificate. He never drew breath so he has neither certificate.

Legally he never lived

Even though in the eyes of the law he didn’t exist to us he did. I felt him moving constantly inside me kicking over and over. We saw him somersaulting on scans and constantly moving even if no one else did. We knew him a little and met him whilst he was sleeping. He looked like a miniature version of my hubby with a thick head of dark brown hair. His name sits now underneath his big sisters name on their headstone at her grave. We interred his ashes with his sister Violet so she can look after her baby brother.

Their baby sister is continuing to light up our lives here living up to her name “Goddess of the Dawn” and certainly keeps us on our toes.

Rest in peace my little rocket man; keep kicking those legs making those rainbows up high.

Love,

Sarah

Always Violet Skies xx

If you enjoyed reading this you might like –

The challenge of a rainbow pregnancy

Somewhere after the rainbow

When you get your rainbow what then

January 7, 2020 by intoleranttravelleruk Categories: anniversary, arthur, baby loss, childloss, rainbow, UncategorizedTags: arthur, baby loss, baby loss survivor, child loss, child loss survivor, due date, due date anniversary, life, rainbow baby, tfmr Leave a comment

September = New Beginnings

From the age we first start school we are conditioned into the fact that September means new beginnings so much so that as adults, even when we have no school age children and are no longer in education ourselves, September can often still seem exciting as we prepare for autumn with new clothes, new stationary and a renewed focus for the future. This has always been the case for me. I loved school even more so a new notebook, accessories and clothes that came with it!

Enjoying a beer with friends & catching the last of the September sun

A New Beginning no one wants

September equalled new beginnings. I could always look at this month in a positive way until 3 years ago when that new beginning first came to equal a negative “new beginning” no one wants to ever face. That new beginning was the loss of my daughter and the new beginning that year was trying to carry on with some semblance of life without her in it. No one ever wants that kind of new beginning and this has become my biggest on going challenge to date. It’s tough really tough and never ending. Yes it was nearly 3 years ago but it feels like yesterday one minute and like a scene from a movie about someone else’s life in the next.

Another horrendous September

Then the following September after our annus horribilis we faced another “new beginning” to add to the stress of the one the previous year. This was the loss of a much-wanted son that came out of the blue with shocking news for me accompanying it and so we had to arrange a second child’s funeral in our second stressful September “new beginning”.

Arthur’s Giraffe that now belongs to Aurora his little sister

Bringing control back

So last September I organised the Violet Ball to take back control of my Septembers and that year’s “new beginning” was a black tie charity event for 200 people to raise funds for Alder Hey children’s hospital. Which as an experienced PR is the kind of event I have organised before but this time with a 6-week-old new born baby in tow event organisation wise that was a first for me!

An exciting New Beginning

This September we decided not to do a charity ball as we agreed we needed a summer to relax and decompress rather than run around finalising an event. I was dreading finding out what this year’s “new beginning” for September would be. But you know what this year’s is actually a positive (hopefully) and challenging one as I got asked to become a part time Associate Lecturer at MMU Business school teaching marketing. New starts and exciting new beginnings that are positive is exactly what I needed and I might treat myself to a new notebook.

Hope your September’s have been successful and less stressful ones too.

Keep positive

Love Sarah

Always Violet Skies xxx

You might be interested in these other blog posts –

Four years a mother

My authentic self

What happens after your rainbow

September 22, 2019October 8, 2019 by intoleranttravelleruk Categories: anniversary, arthur, baby loss, back to school, childloss, grief, Not forgotten, Regret, VioletTags: anxiety, Baby news, babyloss, child loss, childloss, motherhood after loss, new beginnings, new life, Newborn, parenthood after loss, parenting after loss, pregnancy after loss, September 2 Comments

Back to school – Why this time of year irritates me?

In early September when kids start or go back to school it’s not so much the hundreds of photos of them lined up in front of either a front door or a fireplace that irritates me but more the stupid comment(s) that accompany them. So to save me from adding a passive aggressive and brutally honest blunt comment in reply to some of these posts I decided instead to write this, so hopefully if you care you will read this and think before you write that irritating social media post.

My aunty Jenny’s gorgeous front door – without a child in a school uniform

Here are those comments

“I wish he or she would stop growing” errr no you don’t because that would mean they would die and then be dead like my daughter who remains 15 months forever.

“Oh they’re growing too fast” at least they are growing there are lots of parents out there whose babies are sick and not growing fast enough. Be thankful you’re not them and don’t insult these parents by complaining when your child is healthy and thriving.

“Oh I wish they would stay as babies forever” errr no you don’t see my earlier comment above. Would you like it if they died then they would always be a baby?

“I miss when they were little” that’s why taking photos is so important but be thankful you don’t just miss them because they are no longer with you.

My fireplace without a child in a school uniform in front of it – “Back to school”

“It’s all going too fast.” You know what life tends to go fast when you’re enjoying and/or loving things. Try sitting in a hospital chair next to a sick child and your days seem to drag on and on. Or heavens forbid sit next to their grave. There are lots of parents sat in hospital with their school age child who is too sick to attend school and I can tell you their days just drag on. They would give anything to be doing a school drop off instead and waving goodbye to a child at the school gate rather than in an isolation ward as they nip to the loo.

“I wish time would stop” no you don’t because then you would be dead. Do you want your child or family to grow up without you? Think how extremely lucky you are to be alive now and living in the reality you have. Embrace every second and live in the present not the future because you certainly don’t want to be living in the past or to only be alive in someone else’s past.

Share those photos

So folks if you feel the need to share photos of your little darlings in their school uniforms to celebrate that they are growing, healthy and happy. To thank the universe that they were born to you in a country with free healthcare and education, so they can actually go to school then great share away. But please out of respect to those of us not in as privileged a position as you don’t wish for your children to stop growing, for time to stop or say that you are upset they are going to school. Be happy and be grateful. Appreciate the now and embrace the moment because you are right about one thing it isn’t happening again. Relish the time and moments. Take the photos, make the memories and remember to feel happy not sad. Embrace this exciting new chapter in you and your child’s life – hopefully there will be many more yet to come too.

A front door without a child in a school uniform – “back to school”

I know a hell of a lot of people who would love to be buying a new school uniform, waving their child off at the school gate and at the end of the day hearing all about how their first day went. Myself included. This September Violet should have been starting Primary School and that she isn’t hurts us beyond belief. We would do anything to have her here now. We know as a little book worm at 15 months that she would have loved going to school. So if your child is attending school this September be thankful and celebrate it but don’t for a second wish for something different.

Big love, Sarah

Always Violet Skies x

You might be interested in these other blog posts –

Four years a mother

My authentic self

What happens after your rainbow

August 28, 2019September 22, 2019 by intoleranttravelleruk Categories: anniversary, baby loss, back to school, childloss, family, grief, Heartbreak, Violet, WishingTags: anxiety, babies, baby loss survivor, babyloss, back to school, Broken hearted, Child bereavement, child loss, child loss survivor, children, fireplace, front door, Heartache, September Leave a comment

Grief is like being Ship wrecked

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This time of year we find a little tricky because this is the week our baby Arthur was due to be born, and although we marked his official first birthday and day he died in September, I still feel a little tug that says we should be having a first birthday party for him in early January.

Why is grief harder for a TFMR?

Grieving for Arthur I find harder and more complicated than I do for Violet as the situation is much more complex:

We never knew Arthur not properly. Yes I felt him move and kick inside me (a lot) but we never got to met him alive.
We were the ones who decided to end his life prematurely based on medical facts and delivered him early sleeping. The hardest decision we’ve ever made.
The bittersweet this is that if we hadn’t decided to lose Arthur when we did then we wouldn’t have had Aurora and she wouldn’t be here today. So that is hard to swallow – how can you feel sad about someone who led to the creation of someone else?

Thank you Arthur

Anyway I saw my counselor this week and she said we should thank Arthur for giving us Aurora so tonight we will toast our little boy. She also passed me a really lovely article that was taken from a guy called GSnow’s Reddit account. Some of the original isn’t really relevant to child loss so I have edited it somewhat and also added some of my own words but you can read the full piece he wrote here.

Grief is like being Ship wrecked

“As for grief, you’ll find it comes in waves. When the ship is first wrecked, you’re drowning, with wreckage all around you. Everything floating around you reminds you of the beauty and the magnificence of the ship that was, and is no more. And all you can do is float. You find some piece of the wreckage and you hang on for a while. Maybe it’s some physical thing. Maybe it’s a happy memory or a photograph. Maybe it’s a person who is also floating for me luckily it was my husband and we clung to each other. Some of my family and friends also floated nearby providing sustenance for us to carry on. For a while, all you can do is float. Stay alive.

At the start

In the beginning, the waves are 100 feet tall and crash over you without mercy. They come 10 seconds apart and don’t even give you time to catch your breath. All you can do is hang on and float. After while, maybe weeks, maybe months, you’ll find the waves are still 100 feet tall, but they come further apart. When they come, they still crash all over you and wipe you out. But in between, you can breathe, you can function. You never know what’s going to trigger the grief. It might be a song, a picture, seeing another young family similar to yours on the street, the sound of a baby crying. It can be just about anything…and the wave comes crashing. But in between waves, there is life.

Eventually…

Somewhere down the line, and it’s different for everybody, you find that the waves are only 80 feet tall. Or 50 feet tall. And while they still come, they come further apart. You can see them coming. An anniversary, a birthday, or Christmas, or a family gathering. You can see it coming, for the most part, and prepare yourself. And when it washes over you, you know that somehow you will, again, come out the other side. Soaking wet, sputtering, still hanging on to some tiny piece of the wreckage, but you’ll come out. Occasionally the wave can come from no where and totally overwhelm you but again you rise up, gasp and breathe again.

The waves never stop coming, and somehow you don’t really want them to. But you learn that you’ll survive them. And other waves will come. And you’ll survive them too.”

Dianne Oxberry

I started to write and plan this article before I read the sad news today about local BBC newsreader Dianne Oxberry who sadly passed away. I have lots of friends who were her friends and everyone who met her spoke fondly of her, so this article is dedicated to her friends and family. May you ride the storm of grief and find some lovely memories from the beautiful ship to cling to. If you know those close to her please help them to stay afloat. Do this through kindness and compassion.

Big love and hugs,

Sarah x

Always Violet Skies

Baby Loss Awareness Week

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Some of you who read this blog, know me or just follow me on social media may be aware that my daughter Violet died at the end of September but what you might not realise is that her funeral coincided with baby loss awareness week 2016. The second anniversary of that is today.

2016

At the start of this week in 2016 we got the news that the coroner was releasing her body so we had to finalise things with the funeral directors and to make arrangements for her funeral, including making decisions like cremation or burial. We decided to bury her because I couldn’t face the idea of my baby being burned. Crazy I know as she was dead already but I still felt as though I was protecting her little body by burying her instead. Then we had to decide where to bury her and to pick a plot.

Choosing a burial plot

We decided on southern cemetery as it was close to where we live and there are lots of important and respected people resting there. I know it seems ridiculous but I felt as though she’d be in good company alongside Elizabeth Gaskell and Anthony Wilson – if it’s good enough for them then….

I remember us visiting Southern Cemetery and one of their team taking us to show us the baby section of the cemetery. They explained there was only one of these tiny plots left beside the road going through the cemetery. It was a small plot surrounded by other little baby graves. Next to it was a communal baby grave shared by many that must have had them all stacked on top of each other as though they were on a supermarket shelf. It made me feel ill and I decided over my own dead body would she be buried here.

Investing in the future

I asked the cemetery man was there not anywhere else and he said we could have a family burial plot but that would be more expensive. I said “fine she’s not being buried at the side of a road even if I need to put it onto a credit card”. I asked him to show us what they had available. He showed us several plots and one was under a big cherry tree opposite the grave of Kirsty Howard, the amazing girl who was so brave and raised so much money for Francis House. I said that one would do. None of the plots were acceptable or perfect because my baby being dead wasn’t acceptable. Our final choice was simply the least offensive and I strangely felt comforted knowing that Kirsty would be her neighbour. I hoped being kind and compassionate that she would look after my little girl.

The funeral plan

In the middle of Baby Loss Awareness week 2016 I wrote Violet’s eulogy. I wanted to ensure her send off did her memory justice and that everyone would know exactly who she was and would understand why we loved her, as much as we did. We selected her favourite songs for her funeral, a close friend agreed to give the service for us and we thought about what she would like. I know she was only 15 months old but she had very strong opinions and preferences on things. She loved balloons so we asked everyone to bring a balloon to her service. She liked to make people smile so we arranged for all the balloons to be collected then taken to the children’s hospital and her nursery. We set up her fund in this week too for Alder Hey hospital’s cardiac surgery fund and asked people to donate to it.

A photo my brother took behind him in the chapel at Violet’s service. So many people cared & some were stood outside

Funeral day

The day of her funeral, the 14^thOctober, was the penultimate day of baby loss week 2016. I remember it was a crisp autumn day with blue skies and sunshine, even though there had been bad weather forecast we only had high winds that day. I went through the day in a bit of a trance almost as though I was an outsider looking in and I carried the angel bear that I had been sent the day before. I cuddled and sobbed into the bear throughout the service. The bear was a gift from an amazing little charity called Heart to Heart UK that also gifts bravery bears to children undergoing heart surgery. Their gift really helped me.

Wave of Light

The day after Violet’s funeral was the last day of baby loss awareness week. All around the world people lit candles at 7pm creating a wave of light in memory of all the babies lost. We lit a candle in our empty quiet house full of sympathy flowers and cards then we cried some more and had a drink.

Decisions, Decisions…

I decided to write about our week in 2016 because sometimes you don’t think about what parents have to go through logistically just after their baby dies. You almost forget that they have to make important decisions during this most horrendous time. Decisions about choosing a funeral director and whether to bury or cremate? What to do for a service? Whether to ask people to donate to charity and if so which one? All these things would be difficult enough if your child hadn’t just died but they have. The world as you know it has just ended. The most important person in your world has gone and you have to make these decisions.

So please join in with celebrating the end of child loss awareness week by lighting a candle at 7pm on Monday to join the wave of light. Also have a drink with us as we mark the end of the anniversary of probably one of the most difficult weeks of our lives.

Thinking of our lost babies Violet and Arthur this week but about our darling daughter today. The day we laid her to rest with music, balloons and colour just how she would have wanted.

Love

Sarah

Always Violet Skies x

October 14, 2018June 21, 2019 by intoleranttravelleruk Categories: anniversary, baby loss, childloss, grief, Heartbreak, memories, Not forgotten, UncategorizedTags: babies, Baby loss awareness week, babyloss, BLAW2018, cemetery, Child bereavement, child loss, childloss, children, funeral, Heartache, life, Memorial, southern cemetery, tfmr, wave of light Leave a comment

I used to love September

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This is now the worst month for me.

It never used to be this way. I used to love September. It was always one of my favourite months.

The starting back at school with a new year of classes. I was such a geek I couldn’t wait. New pencil cases, stationary, new uniform and shiny new shoes always excited me.

Then there was the turning of the leaves and the beautiful autumnal colours. The amazing sunsets as the weather starts to cool. The wearing of cosy clothes – knee length boots, fleeces, jeans, jumpers & fluffy socks. Open fires, comfort food, hot toddies and bubble baths. Watching the rain from inside a warm house and listening to the wind whistle round the chimney.

Autumn sunset in Manchester city centre on border of Salford

In the last ten years I’ve enjoyed spending time in Cyprus where it’s like a second spring with all flowers having another annual bloom so colourful and cheerful.

However all of this changed in September 2016 when my precious daughter died and in the following September my son Arthur was born sleeping too.

All of a sudden the changing colours of the autumnal leaves began to represent death to me. The darker nights and chilly weather no longer cosy but depressing and miserable. The pouring rain represents the tears I now shed at this time of year and the wind howls in pain for my lost babies.

I can’t face visiting my cheerful uplifting place either in the Cypriot sunshine with colourful flowers and amazing views as last time I was there I was with my daughter, but maybe I will visit again in the next few years.

This year in order to attempt to focus on something else, something much more positive, I decided to organise the Violet ball in memory of my beautiful daughter on 29th September, a few days after the second anniversary of her death, to raise money for Alder Hey hospital’s cardiac surgery fund. I hope those of you who are able to join us do so and that we all see the month of sad September out with a bang.

Click here for details of ball.

Thanks for reading

Love Sarah

Always Violet Skies x

September 16, 2018June 21, 2019 by intoleranttravelleruk Categories: anniversary, baby loss, family, grief, Heartbreak, memories, Not forgotten, Park, stress, UncategorizedTags: babies, baby loss survivor, Baby news, babyloss, Broken hearted, Child bereavement, child loss, child loss survivor, colours, Heartache, life, Manchester, PAL, pregnancy after loss, PTSD, September, travel, trees Leave a comment

Violet’s third birthday

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Last week was a hard week for us as it was our daughter’s third birthday. Along with the happy memories we also had memories of her difficult birth, where both of us nearly died, and the memory of her having heart surgery too.

Violet at Alder Hey — When she was at Alder Hey in intensive care, when we couldn’t hold her she held our fingers & later on in her life she took comfort from holding hands.

First 10 days in hospitals

This time three years ago she spent her first 10 days in various NICU wards, at St Mary’s hospital first before she was transferred to Alder Hey hospital. In Liverpool she had open-heart surgery at just 4 days old.

We had to sign a million legal forms and contracts saying we knew the odds were stacked against her. That we knew she might not survive and return alive from the operating theatre. And that if she did there was a chance of brain damage; disabilities and the heart problem might not be “fixed”. We also knew her chance of survival without the operation was nil. She was only alive because of the additional hormones and support she was being given.

Off for heart surgery at 4 days old

I still remember the day she went off to the operating theatre that morning was only the second time I had actually held my daughter in the four days since her birth. The first time being the day after she was born just before she left St Mary’s Hospital in an ambulance for Alder Hey, with her daddy in a taxi in hot pursuit. We didn’t want her to be alone without at least one of us. I had to remain in St Mary’s because of all the injuries I sustained during labour and as soon as I could I was discharged to head over to Liverpool.

Me & Violet at Alder Hey — The second time I held her just before her heart operation

We told her about exciting plans

The days before her operation and the hours before it we spent time talking to her about what we were going to do together once she was out of the hospital. We chatted about all the different people she would meet, describing friends and family members to her in detail. We spoke about all the places we would take her to including New Zealand to see her Uncle Tom. Cyprus to see her Aunty Mel and Bali for mummy & daddy’s honeymoon. We chatted about her Grandma and Nanna. Said she would learn to swim.

We basically described to her then the life she ended up having crammed into a 15-month period. I wish I had have mentioned university and her own children to her then perhaps she’d have stayed around for longer!

Me & Violet in Cyprus — Violet in Cyprus in April 2016

The journey to operating theatre

When they took her down to the operating theatre I couldn’t watch. I knew I would end up screaming and it would distress Violet, so instead I collapsed onto the floor of the nearby family room sobbing. Her brave daddy on the other hand walked her down to the operating theatre. Talking calming to her the whole time reassuring her. Reminding her how much she was loved. How strong she was and that she could do this.

Violet & daddy in Alder Hey — The bond between father & daughter was strong from day one

Then we waited for an eternity

Then commenced the longest 8 hours of our life as we hung around the hospital waiting for a phone call. We finally received it saying she was out and still alive! We were so relieved but our hearts sank when we returned to the NICU ward to be told that the specialist team wanted to speak to us before we saw her. We thought oh no this is where we get told something bad has happened. We were told the opposite that the surgeon thought it was an 100% success. He felt she wouldn’t need any other operations on that part of her heart again ever.

You know what we discovered he was 100% right too, as her post mortem showed his operation was a permanent fix. This is the reason we are fundraising in her name for Alder Hey. So superstar surgeons can continue to work their magic on baby’s that are told they only have a slim chance of survival.

Now it feels like a story

Last week these memories all felt like it was someone else’s story, as though it was a different life and it played in my mind like a feature length film.

Thoughts of ordinary things

The thing I found hardest was the realization that ordinarily I would have spent the weekend before her birthday preparing for it. Buying her gifts, cards and organizing a birthday party for her. Then the night before I’d have been putting an excited little girl to bed and wrapping her presents to set up for the morning.

Violet opening birthday presents — Here she’s opening first birthday presents & getting excited about bows!

Party and gift planning

This year instead of planning her party the weekend before I focused on doing some planning for the Violet Ball to be held in her memory on 29^thSeptember to raise money for Alder Hey to thank them for saving her life at 4 days old.

Instead of wrapping her presents the night before her birthday we decided to make up little “Random act of kindness” parcels containing little packets of sweets, including Parma Violets. Then on her birthday we distributed them all around the area where we live. Including taking some to her nursery. Leaving some on the benches near the playgrounds in the local parks where she loved the swings. We left some near the mural on Beech Road that has a violet coloured balloon in her memory. Some near to where she attended Babel Baby classes. We placed some on benches in the cemetery close to her grave, after we took her birthday balloons.

The challenge now will be deciding what we do next year for her fourth birthday? Please let us know your ideas as all will be considered.

Thanks for reading

Love

Sarah

Always Violet Skies xx

June 23, 2018June 27, 2019 by intoleranttravelleruk Categories: anniversary, baby loss, childloss, grief, motherhood, UncategorizedTags: babies, baby, Baby news, babyloss, Birthday, Broken hearted, Child bereavement, child loss, child loss survivor, childless, childloss, heartbroken, memory, motherhood, parenthood, Random act of kindness, third birthday 2 Comments

Anniversaries of loss

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Anniversaries after loss are always really hard for all those family & friends who were close to the loved one.

Commemoration

Talking from experience it really does help when others remember our cherished one on this day and when they commemorate their memory in some way, it reassures us that their legacy will live on.

Never forgotten

Our worst fear is that our much loved child, brother, sister, mum, dad, family member or friend is forgotten so today take the time, observe the silence at 2.30pm today, light a candle, say a prayer or just give a thought to all those who lost their lives in the Manchester bomb last year and know by doing that you are fulfilling the wish of their families and friends in that they are not forgotten.

We will not forget them. Bee strong everyone. 💜🐝

May 22, 2018June 27, 2019 by intoleranttravelleruk Categories: anniversary, childloss, family, grief, Heartbreak, memories, Not forgotten, UncategorizedTags: anniversaries, Bomb, Broken hearted, Child bereavement, child loss, children, Heartache, hope, life, Manchester, Memorial, music, remembrance Leave a comment