When Mother Nature has other ideas

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For those of you who regularly read my blog or follow me on social media you may know that I have been waiting for the news about my heart since before Christmas (see this blog post if you need a catch up).  Anyway that decision was supposed to be discussed with me this week, when I was due to see my cardiologist about my MRI scan results from last year.

Snow

My hospital appointment was on Wednesday, the morning after the night the snow came that caused gridlock across the north west. It meant my cardiologist was one of the many people unable to get into work that day, so, alas again, I am still awaiting news as to what the future holds for my heart and for me.

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Wednesday morning 6am

Frustration

Initially I felt really frustrated that I still don’t know what will happen and all because of a bit of snow! Then I remembered that this isn’t the first time Mother Nature has put a spanner in the works for me and, in the grand scheme of things, this time I feel a bit of snow is quite a minor one.

Other “Mother Nature” surprises

Previous Mother Nature surprises have included nightmares such as my first child Violet being born with a heart disorder that was 100% fixed, thanks to medical science, then only to die from an extremely rare lung disease.  Then I am diagnosed with a heart disorder too, that it seems I was born with.

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Violet’s butterfly in our garden reflecting the warm lighting from inside the house

My second baby was given the all clear as healthy at his 16 week scan. Then we were told at the 20 week scan that his brain hadn’t formed correctly so we’d need a TFMR.  During both of these births medical procedures went wrong and I nearly died.   Then I was told the issues both babies had were probably genetic and inherited from me. After tests it turns out the faulty gene is so extremely rare they can’t identify it as yet (of course it bloody is!).

Not all bad surprises

Then Mother Nature pleasantly surprised us with my third pregnancy, which we weren’t expecting as it was immediately after losing Arthur. This time it went smoothly producing the beautiful Aurora.  Perhaps she felt she owed me one!

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Aurora watching the snow – her first.

So Mother Nature continually surprises us on a frequent basis so I really don’t know why a bit of snow causing gridlock on the one day I really wanted to be able to see a consultant shocked me at all.  I should be getting used to this by now.

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Our neighbours snow covered garden so pretty

Ride the Wave

I need to remember to a certain extent to “ride the wave” or “go with the flow”, when forces beyond my control come into play and balls everything up.  It really is like the shipwreck analogy of grief. I’ve been clinging to the “I’ll find out about my heart on Wednesday” piece of wood to stay afloat and buoyant for the last month only for it to suddenly disintegrate plunging me under the icy waves once again.  Anyway now I’ve clambered onto the “meh so what” Irish whiskey keg barrel and seem to have recovered again!

All I can say is that if a higher power does exist they certainly have a very dark sense of humour with the twists and turns they deliver to me on a regular basis.

I’m just hoping I get to see my cardiologist soon and that he says I can have a keyhole procedure in the not too distant future.

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Good job the snow is so pretty.  Can you spot the birds?

Hope none of you were adversely affected by the snow and scuppered by our good old Mother Nature.  Keep warm.

Big love

Sarah x

Always Violet Skies

You might be interested in the following posts too –

More of a mother – does a natural birth make you more of a mother?

Somewhere after the rainbow – what happens if you lose your rainbow?

Mothering after loss

Guilt when a mother of loss

Tis the season to be jolly

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Well not for lots of people it isn’t. People who are alone, homeless, financially struggling, have mental health issues or who have lost someone dear to them it’s often a time of year they dread.

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Violet’s one and only Christmas morning

For us we face another Christmas without our little girl who’d be an excitable 3 year old this year and our little boy for whom it’d be a first Christmas. My husband will experience another year without his beloved father who died just before becoming a grandpa, a role we know he’d have excelled at. This year however, unlike the last two years, will be bittersweet for us as we now have our gorgeous little rainbow baby Aurora who will be 5 months old.

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Violet in her Christmas jumper and matching trousers!

The first year after we lost Violet we actually couldn’t face Christmas at all so a lovely friends parents’ leant us their holiday home in the Caribbean and my mum treated us to flights so we could escape the whole season for 2 weeks. We were very fortunate to have such wonderful friends and family that could afford to help us escape in this way. I know others often aren’t as lucky and may choose to escape through shutting the world out at home. Or maybe their escape is immersing themselves in other people and going through the motions of Christmas, perhaps if they have other children then they have no choice.

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Me with Violet this time 3 years ago.  Photo taken by the amazing @hollygoeslightly

Last Christmas we spent with family who happened to also be going through a hard time, albeit for a different reason, as we wanted to do what families should do and be there for one another. Although we did escape for New Years and what should have been our Arthur’s due date, as we couldn’t face that so we booked cheap flights and headed off to Morocco.

This year will be the first year we don’t escape Christmas or New Years, instead we are inviting family to spend it with us. We will wake up with an excitable 4 year old niece on Christmas morning and it will be a first Christmas for our littlest nephew as well as our daughter. The fact that we can help to make it a magical day for my niece and nephew, I think will help us to get through it.

What’s sad is this year the kind family who helped us to escape that first Christmas have just suffered a devastating loss themselves so this festive time will now be especially hard for them. Our hearts go out to them this year.

Our motto is that if you are able to celebrate Christmas this year then embrace your family or loved ones. Make the most of every second because you have no idea what the future holds. Also if you can help to make someone else’s Christmas better or easier this year then do it. Whether you donate to a local food bank, drop Christmas presents into a charity looking after disadvantaged children or just invite your elderly neighbours round for Christmas dinner, nothing says Christmas like looking after those who are suffering by easing their pain or helping them to also have a nice experience, even if for one day only.

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Me & Violet with my brother & sister with their little ones 3 years ago

I can’t wait to hear all your lovely stories of goodwill and sharing. I’ve heard lots already, as I’m blessed with lots of amazingly kind people in my life. So far there are tales of people stocking food banks with so much food they can feed many families over the 3 days of Christmas. Those who fundraise and collect donations for presents for underprivileged children. Some have collected blankets for the homeless.  Keep up the good work. They say money is like manure; it’s not worth a thing unless it’s spread around well I say the same can be said for kindness.

Sending big hugs to you all and I can’t wait to hear more heartwarming stories.

Love

Sarah x

When you finally get your rainbow baby what then…

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Most people I meet now, after they’ve recoiled from the shock of hearing I’m a mother of three but only one child is alive, say things like “oh third time lucky then” or “at least it’s all worked out in the end”  Urmmm no it clearly hasn’t all worked out in the end has it? Has my daughter Violet suddenly sprung back to life?

Rainbow pregnancy

When I was pregnant with Aurora people could understand why I might have been anxious and there’s even a term for it PAL or pregnancy after loss but once your rainbow baby is here then people assume that’s it and you must be feeling better now. The grief over child loss must be over now you have another baby surely? You can move on and avoid dwelling in the past.

I’m a mother of three

Well unfortunately it’s not that simple you see, yes I may have another living baby now but I still had two other children before her and just like those with more than one child. When you have a new baby you don’t throw your old one away and forget about them do you? Or you shouldn’t.  If you do then social services rightly get involved. So why should it be different for angel babies? Why forget about them? How can we forget about them?

Moving on?

I don’t blame people who think I must have moved on though, as suddenly they see me out and about with my new baby actually smiling and resembling someone who’s happy. I guess I am happy fleetingly which is an improvement but it’s now as though I’m on a permanent roller coaster. Aurora smiles or babbles at me equals on a high then she looks at me in a certain way & I see her sister Violet in her equals unimaginable high & then immediate low.

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Side swipes

I still get side swiped daily by emotions but different ones from before. Seeing a mother cooing over a baby no longer makes me want to cry for the loss of Arthur although I admit seeing mums with little boys gives me a pang of pain. Now it happens when I see parents of multiple children walking with them all to the park. Brother and sisters playing and arguing together. Family lifestyle photo shoots of the whole family looking happy together in autumnal leaves (yes I do live in Chorlton! Lol). Even at Halloween cute sibling photos of older ones taking their toddler brother or sister trick or treating for the first time pour salt onto my wound.

Autumn photoshoot - Ian Scott Photography
Credit ianscottphotography.co.uk

Imagination

I find myself trying to imagine what Violet would look like now aged 3.5 and what she’d think of her little sister. How would they interact? When Aurora is bigger what arguments would they have about minor things? I find it hard to imagine and to think of Violet as anything more than a baby, almost toddler. I find that upsetting too. Her sister will never know her. I can’t imagine life without my sister so now I feel a new level of grief for Aurora for the big sister she will never know or experience.

The hallway of family photos we have where the sisters may sit side by side in different frames but never actually occupy the same one. There will be photos of Aurora getting older, fingers crossed, next to the same photos of her big sister who will eternally be a toddler.  That will be a concept I’m sure Aurora when she’s older will struggle to get her head around, how can a baby be her big sister?

Family photoshoot - Manchester Photography courses
Family photoshoot – credit Manchester Photography courses

I wonder what Violet would have been like today and what she’d have thought of her baby sister?  Do you ever wonder what if?  I do every moment of every day.

Love Sarah

Always Violet Skies x

A Magical Woodland

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When I heard about this magical woodland event I was excited to attend with my family, including my 4-year-old niece and baby nephew too.  I hoped it would live up to expectations and we weren’t disappointed.

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Some of the girls in my family

The entrance

The lighting was breathtaking with different themes in various areas of the woodland. Special LED effects, changing colours, laser lights and hanging orbs made the park a sensory experience.  The musical choice made it feel as though you were entering a Harry Potter-esque world so felt truly magical as we entered the wood.

The woodland

Several paths wound their way through different sensory experiences to a central campfire area where you could purchase marshmallows on sticks to toast around the fire and there were a few food stalls there too selling hotdogs, mulled wine and sweets.  The gooey toasted marshmallows certainly went down well with my niece Evelyn.

Aqua rhythm

One of the highlights in the woodland was the Aqua Rhythm water fountain.   Jets of water danced to along to music and a laser light show accompanied it.  Evelyn and other children stood transfixed in front of it for quite some time.  My baby nephew, 8 months old, watched it from his pram wide eyed so this proved a sensory hit for babies too.

Owls

Just beyond the “Heart of the Woodland” there was an owl marquee so children can find out about and see owls up close. This included a Little Owl that proved a hit with Evelyn who wanted to take it home.

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Educational

It was also a fun educational experience as there were some great interactive puzzles and games for children and adults alike interspersed around the woodland.   The favourite for Evelyn was a game that distorted your voice and she spent quite some time making various bodily sounds through it finding it hilarious when it returned the noise with added depth!

Magic

There was a flamboyant chap in a flashing top hat that my niece described as “clearly a magician”, who introduced himself as a physicist so she was close!  He demonstrated to us the concept of a sonic boom using a giant sized Newton’s Cradle style pendulum, that was lit up so as the balls swung they lit up the sky around them.  The sonic boom you could hear rumble throughout the woodland.  It was an amazingly fun way to introduce children to scientific concepts, it made me think they need to invest in one of these giant Newton’s cradles at the Concorde visitors centre to explain more clearly this concept to children.

The rainforest area had dry ice that emulated mist and bird/insect sound effects to accompany the lighting that transitioned into different colours.  I found this area to be the most relaxing in the woodland. Whereas my niece said she found it spooky and when there was a load rumble from the sonic boom she jumped out of her skin, proving this is also a great experience to bring your kids to for Halloween!

Dry weather

We were fortunate to have really beautiful autumn weather, it was pretty mild and dry which was good as we had two prams with us. If it had been wet we would have struggled to push them round the site. So if you go when it is wet or after heavy rain I’d suggest taking a baby carrier instead to manoeuvre round the hills.

Summary

We had planned to spend an hour there but ended up spending just over two hours. There really was so much to experience we lost all track of time.  It proved a great way to tire out little and big ones. It was excellent exercise walking them up and down hills. Evelyn also ran off to climb on tree trunks and play with the interactive games too.

We had a wonderful time in the woodland it really was magical and my niece didn’t want to leave. We would highly recommend visiting before the experience finishes.

For more information and tickets which start from £12.50 click here

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Family beach break to Barcelona

A weekend in Switzerland

Planning travels

Life after child loss