Traditional holidays like Easter are the worst

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Lots of people this week were talking about how they are looking forward to the Easter weekend and spending much needed time with their families and children. I find myself forcing a smile and having to say “I bet”. Then they ask if I’m looking forward to a break and again I smile and say “oh yes of course”. I don’t say that for me my break is being at work away from all the reminders that we have a massive gaping hole in our lives where our daughter should be and isn’t.

Our Easter should be

We should be looking forward to the weekend possibly organising Easter egg hunts in the garden, taking Violet to a farm so she can pet all the animals and we’d take her to the family music events in Heaton Hall too as she’d have loved those.

Loving bad weather news

Is it bad that part of me when they announced we’d have another cold spell this weekend with possible snow thought ‘oh good it’ll save me having to watch smug families going out enjoying spending time with their children, that just hammers home more clearly what we are missing or even having to watch some not enjoying their children, yelling at them which I find even harder to stomach’?

Easter is new life

They say Easter is the time for new life and in previous years I used to find it cheerful and uplifting, as it also meant we were getting close to my birthday, which I used to find exciting. Now it is just a reminder of another year without my precious daughter. Sometimes I feel like a prisoner in a jail striking off lines on the wall with every passing year, while we wait and hope to see Violet once again.

Spring is a time of growth

Spring is the time for growth and lots of children have growth spurts once the weather starts improving in line with more vitamin D and sunshine. It reminds me that our daughter isn’t growing anymore and that she is permanently stuck at age 15 months. She will always be that age in our minds and hearts. We never saw her walk, talk in proper sentences, dance or even eat. She never said “mummy”. This is the really heart breaking thing the realisation of all the things we will never see her do or experience with her.

Make the most of quality time

So if you have children this Easter please make sure you do make the most of your days off work and spend lots of time with them making memories. Hopefully you will always get to enjoy seeing your children grow every year but, if like us, something horrendous happens, then you will only ever have the memories to last you for the rest of your life so make sure they are good ones!

Take photos and make films

Take that photograph and film them opening their Easter presents or doing that Easter egg hunt because it will be over in a flash but the film or photo will last a lifetime, meaning so much to the relatives who bought them that present or organised that egg hunt.

Count your blessings

Also do me, those who have also lost children, struggled to conceive or would just have loved a family but couldn’t have one, a favour and when you feel like your children are getting on your nerves this Easter, stop for a moment. Take a deep breath and for a minute realise how truly lucky you are and that there are those of us who would happily take all the tantrums in the world, sleepless nights and naughty behaviour just to have our children back. Appreciate your families and try to enjoy the moments, as they really don’t last for long.

For all of us without our kids at least we have chocolate!

Happy Easter

Love, Sarah x

p.s. all the photos in this post were taken at an artisan chocolate factory called HR Chocolate established by artisan baker Haflio Ragnarsson in Reykjavik, Iceland.

The real American meaning of Mother’s Day

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I recently discovered through joining an online support group called the Tigerlily Trust that, whilst Mothering Sunday as a concept in UK came from an 16th century English tradition of annually honouring your mother in church the more widely known Mother’s Day was founded in America. In 1907 a lady called Anna Jarvis, wanted to do something to honour her mother who had lost 7 babies.  This original version of Mother’s Day was created to remember and honour her grieving mother.

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The original Mother’s Day

Anna wanted to create a day where people could honour and treat grieving mothers. To actually recognise their pain and suffering in a day of remembrance. It took only a few years before this day that was associated with deep emotions and grieving mothers was hijacked by commercial organisations in the US. They saw it as an opportunity to sell gifts and greetings cards to all mothers. It was then that the Mother’s Day as we currently know it was born.

Ironic

Now it is with deep irony that those women who are suffering the grief of losing a child or perhaps not being able to conceive one are no longer recognised by this day. Instead they often feel even more isolated and upset by the commercialisation and celebration of motherhood. A motherhood they are grieving the loss of and maybe struggling to come to terms with not having.

Once a mother always a mother

Someone said to me, the first Mother’s Day, after Violet died that I wasn’t to let the day upset me. She was sure I would no doubt become a mum again in the future. I was devastated and not strong enough to reply that I will always be a mother, however it’s just my child is no longer here with us. I still think like a mother, feel like a mother and to a certain extent act like a mother because deep down I am one!

Me & Violet in Cyprus
Me & Violet on holiday in Cyprus she was 10 months old

Grieving mums

Anyway to all those grieving mums out there please remember this day was created exactly for women like us. Who have to deal with the pain of losing or not having their babies with them every day. So don’t let other people make that pain worse. Or commercial organisations make you feel bad as they’re just doing it to make money.

Message for all

To all the mother’s out there who have their babies please remember that this day was created for grieving mothers. Mothers who are exactly like you, who through no fault of their own unfortunately lost their children. Please do us grieving mothers or “wish we were mothers” all a favour. Celebrate Mother’s Day and your wonderful children. Hug them close, love them and appreciate all the little moments. Remember that some of us aren’t as lucky. You are blessed not because of the gifts of flowers, chocolates and handmade cards but because of the little people you have in your lives that others would happily give anything to have.

Big love, Sarah x

Grief, Anxiety and Confidence

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Unless people have been through something similar themselves, they don’t really understand that when you’re grieving, yes you go through waves of sadness, anger and frustration at the world but there’s a huge element of anxiety too.

Anxiety

The anxiety affects every aspect of your life. Almost as though because the worst thing ever actually did happen, then what’s to say something else bad isn’t possible too. This heightened sense of danger makes you nervous and afraid of things that previously you wouldn’t have been concerned about.

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Slipping on ice (photo credit: U.S. Air National Guard photo by Tech. Sgt. Lealan Buehrer)

Like this week the road outside our house was very icy and there was a time I wouldn’t have cared but I was reluctant to go outside, as I know how accident-prone I am. The thought of falling and injuring myself was too scary to contemplate.

Risk avoidance

I find myself constantly trying to avoid risk, whereas as an entrepreneur for many years, risk and calculated odds was something I excelled in. I could easily identify what to take a chance on and what to avoid based on pure instinct. I no longer trust my own instincts.

Violet on 26th Sept 2016
Violet the morning of day she died playing happily with her balloon.  Trying to bash me with it!

The morning my little girl died the hospital said she was doing really well and I could see with my own eyes she was better than she had been for weeks. We were all so very happy. I messaged everyone with photos showing how well she was doing. I thanked every single God that she had turned a corner. That evening she died suddenly and I realised that my eyes and instincts could lie. Also that medical specialists don’t know everything. That deeply affects everything else in your life. It makes me question it all. All of a sudden is “green” really green?

Questioning everything

Not only do I question my instincts more but I also worry about things I never used to. I constantly question everything…

Am I doing a good job for my client? (even when they give me positive feedback!) Am I still a nice person?  Have I turned bitter because of losing my child? Have I offended someone somehow because they didn’t phone me back?  Does xxx still like me? What if xxx is just trying to be kind because they feel sorry for me?  Have I made that person uncomfortable with my honesty? Did xxx feel awkward because I brought up a story about my daughter and they didn’t know how to react?  Am I any good at my job? Can I even write? Do I actually know what I’m doing?  Does anyone care about what I think? What if I burst into tears how embarrassing?  What if no one wants to speak to me as they think I’ll be miserable & I’ll depress them because bad things always happen to me? Maybe xxxx is avoiding seeing me because she thinks her baby/pregnancy/kids will upset me?  Perhaps xxxx doesn’t want to have to deal with any negativity as she’s all about positive thinking & I have issues? xxxx clearly doesn’t speak to me anymore or contact me because I make them sad or feel awkward? What if I drive other friends away in the same way? Am I acting odd in social situations?  Am I stuttering? what if…what about…Why did that bad thing happen was it because of me?

Confidence

These constant niggles and questions I now ask myself all the time. They started when Violet died and they aren’t going away.  They increased even more after Arthur died, as he gave us so much hope for the future and then our world became doomed once again. These thoughts now chip chip chip away at my confidence in every area of my life, so some days I almost feel like I shouldn’t even bother. I find it a real challenge to drive myself onwards, often having to give myself evidence as to why certain things aren’t true. Why some things aren’t the case.

I’m seeing a great counsellor, finally (as I have been through a few, some who I made cry & others that ended up being aggressive with me but that’s a post for the future!). They are trying to help me to work through these issues.  You don’t usually hear people talk about confidence and anxiety when they’re grieving but I’m learning now that it is far more common than you think.  Quite a few people I have spoken to who have lost a loved one have said that it also really affected their self-confidence.

Thank you to you all for your patience with me and for helping me to believe in myself again!

Love, Sarah x

Always Violet Skies

You might be interested in reading these posts –

The challenge of a rainbow pregnancy

PTSD with a rainbow pregnancy

I have my rainbow what now?

Our second rainbow

Sleep anxiety with rainbow baby

Question time: the questions I dread being asked

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At work events

For those of you that don’t know, I do PR and marketing for a living so that involves at times attending networking events, black tie dinners and entertaining clients. In the past I’ve always excelled at making small talk and creating conversation with new people. I used to find it easy to get a rapport quickly. However now I find myself dreading strangers asking me questions that are usually quite normal to ask when getting to know someone. Questions such as “do you have any children?” or “do you have a family”.

Honesty is the best policy

I then have a choice do I lie and say “oh no I don’t” then the conversation can continue to move along in a light hearted cheerful way? Or do I tell the truth that I have had two children but unfortunately both have died? This honest approach is the one I usually use, as I don’t believe in lying to people, especially when my job is formed on the strong foundations of trust and honesty. It’s all about building relationships.

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Violet at a few months old

The more I practice the easier it gets for me to deliver my “Yes I did have two children but unfortunately they died. I had a little girl who died a year last September at 15 months old and a little boy who only made it to 22 weeks of pregnancy. He died last September because of an incurable brain abnormality.” And “no we don’t know why my little girl died. The coroner opened an inquest into it and we finally have an inquest date of 17th May.” The first few times someone asked me I ended up in tears during the inevitable questioning that ensued afterwards and made my guests feel awkward that they had upset me. Now I have it down to a tee and can deliver explanations, answer questions in the same matter of fact way I tell people about where Randall & Aubin source their fish!

It’s almost becoming natural now for me to talk about it openly at work if I’m ever asked but I worry that people may think I’m cold or detached as I now rarely get upset at all in a work environment. I find myself able to talk about my children in almost a matter of fact clinical way.

Behind closed doors

Afterwards once I get home is a different story as I find I have to have a little cry to let the emotion I bottled up out and if I find myself having to tell lots of different people my sad news at a larger networking event or dinner then it can sometimes can drain me emotionally for days.

I seem strong

People assume because I can put on a brave face for work and social situations that deep inside I’m strong, tough and can cope with anything. Sometimes they then feel the need to share their problems, dilemmas and trials with me, thinking if I can handle losing my children then I can maybe help them too. They don’t realise the tidal wave style flood I’m often holding back under the surface. A volcano more often than not looks just like a still stationary mountain from the outside but inside there’s a great deal bubbling under the surface that no one sees until the big outpouring or eruption, That’s how I feel most days.

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Photo of Pat in Iceland just outside Reykjavik

So yes I may seem strong, calm and together on the outside but you’ve no idea the effort that that can take in order for me to put my “game face” on (I mean that in the together psychological sense rather than a make up one!). Yes I do care about my friends and other people, so do feel you can speak to me but please remember there’s a limit sometimes to what extra stress I can take on board. This is especially the case if your stress in the grand scheme of things isn’t exactly that life threatening.

Cancelling plans

Please forgive me also if I make arrangements to see you and then cancel at the last minute sometimes I get so emotionally drained that I can’t face having to make conversation with anyone.

Thanks for reading,

Love Sarah x

Always Violet Skies

You may find these posts interesting too –

After the Rainbow

Mothering after loss

Making over motherhood

The Small Things

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I used to be a self-confessed shopaholic before I had Violet I loved nothing more than a shopping spree round town getting a new dress, looking at the sales, maybe some new shoes, new toiletries etc. Now I hardly ever shop.

Violet in a pretty dress
Violet wearing a new pretty dress in May 2016 & it always cheered her up

Experiences

Instead losing my children has taught me to appreciate the experiences life has to offer, rather than simply buying stuff. So now we’d rather spend our money on dinner out or save for a holiday somewhere or spend time in the outdoors.

Family and friends

It has also made us more grateful for our friends and family who have been so supportive, throughout these last few years. Yes we have had good friends fall by the way side but many more that have stepped right up to the plate to hold our hands during our lowest ebbs. We are so appreciative of these people, as it makes us realise that as cruel and evil as the world sometimes seems there are good, kind people out there.

There have also been near strangers and distant friends who have been so kind and gone out of their way to help us in small ways that mean much more because of the thought that goes with it.

Violet clapping bubbles
From the last party Violet ever went to and she loved a good party!

Legacy

Some people have gone out of their way to remember our daughter by doing Iron Man contests, swimming Windermere, organising events and other challenges to raise money for her fund helping us to create that lasting legacy for Violet we so crave.

There have been lots of moments of kindness from people that have reduced us both to tears and we love you all so thank you!

Love, Sarah x

p.s. if anyone wants to donate to her fund click here  and tickets for the Violet ball on 29th September 2018 can be reserved here