Question time: the questions I dread being asked

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At work events

For those of you that don’t know, I do PR and marketing for a living so that involves at times attending networking events, black tie dinners and entertaining clients. In the past I’ve always excelled at making small talk and creating conversation with new people. I used to find it easy to get a rapport quickly. However now I find myself dreading strangers asking me questions that are usually quite normal to ask when getting to know someone. Questions such as “do you have any children?” or “do you have a family”.

Honesty is the best policy

I then have a choice do I lie and say “oh no I don’t” then the conversation can continue to move along in a light hearted cheerful way? Or do I tell the truth that I have had two children but unfortunately both have died? This honest approach is the one I usually use, as I don’t believe in lying to people, especially when my job is formed on the strong foundations of trust and honesty. It’s all about building relationships.

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Violet at a few months old

The more I practice the easier it gets for me to deliver my “Yes I did have two children but unfortunately they died. I had a little girl who died a year last September at 15 months old and a little boy who only made it to 22 weeks of pregnancy. He died last September because of an incurable brain abnormality.” And “no we don’t know why my little girl died. The coroner opened an inquest into it and we finally have an inquest date of 17th May.” The first few times someone asked me I ended up in tears during the inevitable questioning that ensued afterwards and made my guests feel awkward that they had upset me. Now I have it down to a tee and can deliver explanations, answer questions in the same matter of fact way I tell people about where Randall & Aubin source their fish!

It’s almost becoming natural now for me to talk about it openly at work if I’m ever asked but I worry that people may think I’m cold or detached as I now rarely get upset at all in a work environment. I find myself able to talk about my children in almost a matter of fact clinical way.

Behind closed doors

Afterwards once I get home is a different story as I find I have to have a little cry to let the emotion I bottled up out and if I find myself having to tell lots of different people my sad news at a larger networking event or dinner then it can sometimes can drain me emotionally for days.

I seem strong

People assume because I can put on a brave face for work and social situations that deep inside I’m strong, tough and can cope with anything. Sometimes they then feel the need to share their problems, dilemmas and trials with me, thinking if I can handle losing my children then I can maybe help them too. They don’t realise the tidal wave style flood I’m often holding back under the surface. A volcano more often than not looks just like a still stationary mountain from the outside but inside there’s a great deal bubbling under the surface that no one sees until the big outpouring or eruption, That’s how I feel most days.

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Photo of Pat in Iceland just outside Reykjavik

So yes I may seem strong, calm and together on the outside but you’ve no idea the effort that that can take in order for me to put my “game face” on (I mean that in the together psychological sense rather than a make up one!). Yes I do care about my friends and other people, so do feel you can speak to me but please remember there’s a limit sometimes to what extra stress I can take on board. This is especially the case if your stress in the grand scheme of things isn’t exactly that life threatening.

Cancelling plans

Please forgive me also if I make arrangements to see you and then cancel at the last minute sometimes I get so emotionally drained that I can’t face having to make conversation with anyone.

Thanks for reading,

Love Sarah x

Always Violet Skies

You may find these posts interesting too –

After the Rainbow

Mothering after loss

Making over motherhood

Count your blessings

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It’s not all doom and gloom when you’re grieving the death of your child strangely enough there are lots of positives.

Appreciation

The main positive to come out of it is that you really appreciate the good in life and the usual things that would have brought you down really don’t matter anymore. So what you get a parking ticket, ladder your tights or forget to take an umbrella out with you, so you get drenched in that sudden rain shower.

All these things at one time would have stressed me out but now I simply shake things like that off, as in the grand scheme of things unless someone has died or been told they have something incurable then it isn’t really bad news compared to your child dying?

We’d happily give up anything to get our daughter back. If someone wanted me to sign over everything I own to live on the streets or to kill myself in order to get her back then I would do in a heartbeat.

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Violet loved playing with her drum & other instruments

Empathy

The only issue with not being as fazed with day-to-day incidents, is that it reduces my ability to sympathise or empathise with others. If someone has also lost a child, found out they have cancer or face losing a loved one then I know how to relate to them. I understand totally how to empathise with that situation. However if I meet someone who tells me what a nightmare week they have had because they broke a heel on their favourite pair of shoes, had something go wrong with a client at work or have a child that’s teething, then I really find it difficult to sympathise with this.

In fact it often irritates me and makes me annoyed that to some people this is the extent of their bad week. I would love for that to be the worst thing that has ever happened to me!

I feel myself having to practise saying “oh dear I’m sorry to hear that. Poor you” without sounding sarcastic; when I really want to say “pull yourself together”, “get a grip” and “worse things have happened, man up would you!” “You could be like me and have a child die now that’s a bad week!”

Drama queens

I find it so hard to tolerate drama queens too and we all know some. Where chipping their nail varnish is a disastrous day and their boyfriend or husband working late is a nightmare. I simply try to avoid these people now, as they have no idea about the normal world and yes there’s sometimes a sweet innocence about them that you have to love. Currently I find them so frustrating that I almost have to resist the urge to shake them.

So if you need a shoulder to cry on or a friendly ear for a “real” problem then I’m all ears with tea and sympathy but if your problem isn’t life threatening. If it has to do with not being able to find the right dress, then please forgive me if I don’t sound sincere when I say “poor you how awful”.

Love, Sarah x

Always Violet Skies

You might enjoy reading these posts –

The Small Things

A Literal Broken Heart

Party Girl

The Small Things

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I used to be a self-confessed shopaholic before I had Violet I loved nothing more than a shopping spree round town getting a new dress, looking at the sales, maybe some new shoes, new toiletries etc. Now I hardly ever shop.

Violet in a pretty dress
Violet wearing a new pretty dress in May 2016 & it always cheered her up

Experiences

Instead losing my children has taught me to appreciate the experiences life has to offer, rather than simply buying stuff. So now we’d rather spend our money on dinner out or save for a holiday somewhere or spend time in the outdoors.

Family and friends

It has also made us more grateful for our friends and family who have been so supportive, throughout these last few years. Yes we have had good friends fall by the way side but many more that have stepped right up to the plate to hold our hands during our lowest ebbs. We are so appreciative of these people, as it makes us realise that as cruel and evil as the world sometimes seems there are good, kind people out there.

There have also been near strangers and distant friends who have been so kind and gone out of their way to help us in small ways that mean much more because of the thought that goes with it.

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From the last party Violet ever went to and she loved a good party!

Legacy

Some people have gone out of their way to remember our daughter by doing Iron Man contests, swimming Windermere, organising events and other challenges to raise money for her fund helping us to create that lasting legacy for Violet we so crave.

There have been lots of moments of kindness from people that have reduced us both to tears and we love you all so thank you!

Love, Sarah x

p.s. if anyone wants to donate to her fund click here  and tickets for the Violet ball on 29th September 2018 can be reserved here

When baby news upsets me

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I was so excited to meet my brand new nephew yesterday who is absolutely gorgeous and I’m so pleased to see my beautiful sister healthy too. Friends I spoke to afterwards were concerned about it upsetting me and contacted me to check I was ok. It is lovely of them to care but prompted me to write this…

Baby news

After having lost my little girl at 15 months and then a baby boy that never made it to full term, bless him, people seem to think that I’ll get upset if they announce a pregnancy or the birth of their new baby.

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Violet at approx 10 weeks old

I have gotten upset occasionally. Usually if the baby boy was born close to Arthur’s due date and/or been given the same name but even this doesn’t last very long at all.

Happy news

I’m always happy whenever someone announces a pregnancy that’s healthy. Or the birth of a new baby, especially if it’s a close friend or family member. I love to see other people happy and there are always baby cuddles available.

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Arthur at 16 weeks of pregnancy

Sad baby news

What really upsets me is when I watch the news and hear of a baby or child that has been abused or murdered by their parents or family. That is what I find really upsetting, we’d give anything to have our daughter or son healthy and with us. When I read that someone has actually intentionally injured or killed his or her own child I find it abhorrent. That is the baby news that really upsets me and makes me so angry.

Violet & Arthur

Our daughter was so well looked after yet she still got sick and died, from we think a lung disease. My son had severe brain damage, yet I looked after myself in pregnancy, didn’t drink, smoke or do any drugs other than a pregnancy multivitamin! When I see pregnant women smoking and drinking alcohol that upsets me. Women chain smoking, blowing smoke over a pram and toddler that angers me too. Violet was never exposed to cigarette smoke. I feel sorry for children that are. I want to shake their parents to say “do you know what it would be like if your child died?” That is when I get upset about someone else’s baby or child.

Thanks for caring about us though. We really appreciate it when people are so thoughtful to let us know about pregnancies, new babies etc before they then announce it publicly. It is lovely to know you all care and are still thinking of us.  Thank you.

Love Sarah x

Always Violet Skies

You might be interested in these posts –

My story

Making over motherhood

Tantrums and wishes

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Lots of mums and dads dread going out to the shops or to restaurants with their children in case they throw a tantrum or cry, creating a scene in front of others.  I know this as I used to be one of these women, although thankfully Violet was pretty easy going most of the time, preferring to people watch or read books.

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Tantrums

As a parent if your baby cries or throws a tantrum you look around to see other people staring over and you imagine them tutting thinking you’re a bad mother. Or that you are doing something wrong.  Often you don’t get to finish your lunch and you have to ask the wait staff to wrap it up to take it home with you, that you promise yourself you will eat just as soon as baby/toddler goes down for a nap. You’re so busy though you never do get round to eating it.

I remember cringing when my baby projectile vomited everywhere in a cafe.  I was mortified.  Now I’d take that any day of the week!

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Annoyed?

Now I know, if the other people looking over at you are anything like me today, then they will be looking over not in annoyance or pity but longingly. Wishing they were sat there with a child that was crying, throwing food all over the restaurant or indeed creating a scene screaming, rolling around on the floor.  I’d happily change places, rather than be sat there having a quiet peaceful lunch on my own or chatting with a friend.

Never imagine you know what someone else is thinking.  You have no idea what they think or indeed what they have been through so next time your baby makes a scene smile at those looking over and I bet like me they will smile back or even help to distract your little one, snapping them out of it.

Love Sarah x

Imagination

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It may sound daft but sometimes when I get up in the morning and make a brew then sit down in my ever so quiet house to have breakfast, I like to imagine what the me in a parallel universe would be doing now.

A Parallel Universe

If parallel universes exist that is, and I was never a huge fan of science fiction, but it’s one thing that gives me a strange comfort.  I like to think there’s a me out there that’s heavily sleep deprived, complaining to friends about her 2 year old daughter’s tantrums and how her newborn baby who doesn’t sleep keeps getting nappy rash!

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A mother & children on Essaouira beach, Morocco at sunset

The other me will be struggling to juggle the demands of motherhood with two children, work, a husband and trying to stay sane.  Her life would be crazy, noisy and sleep deprived but it will also be full of love.  However she doesn’t realise how truly lucky she is and stresses about how she’s concerned her children aren’t developing at a normal rate.  Are they eating enough? Are they growing?

Optimism

This other parallel universe me has never had to face losing a child so she’s still full of the naive blind optimism I see in other women and people everyday.  The way I used to be. When bad things happened to other people not to you, and whilst you were concerned and saddened to hear of others bad luck, even raising money to support these people, never in a million years would you think it’d happen to you.  It gives me comfort to think there’s still an innocent me like that out there somewhere.

Reality

Anyway then I return back to my reality of being able to eat a quiet breakfast with only the demands on my time from a dog wanting a walk and of course that of my clients at work.  So begins another week for me…I hope you all have a good one!

Love

Sarah

Always Violet Skies

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Somewhere after the rainbow

When you get your rainbow what then?

All about May

Making new memories

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It can be very difficult when you’re grieving the loss of your child to remember those that are living and that you still need to invest time in your relationships with others especially with your husband or partner.

Special anniversaries

One crucial thing we did as a couple was to ensure we planned and booked time in our diaries in advance to mark important anniversaries and occasions.  Making a dinner reservation, booking a hotel for the night or even flights for a weekend away ensured we couldn’t decide to give it a miss when the date came around.  Occasionally one of us would say we weren’t in the mood and the other would encourage and persuade.  

I once even went out to dinner in a lovely restaurant with hardly any make up on and hair was scraped back (as I wasn’t in the mood to try to look nice as it felt too superficial). The fact we did it made the next date we had slightly easier.  The more we forced ourselves the better we actually started to feel about going out and the less guilty we felt about “enjoying ourselves when we had lost our most precious daughter”.

Here’s a photo of me with hubby, minus make up, after being encouraged out last year.  I cheered up when all the lighting was Violet and I was served a Violet cocktail almost as though she planned it!

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Travel

Anyway we still keep this up over a year on and sometimes it can still be difficult for us but we make sure we take time out.  A few weeks ago we celebrated the anniversary of our very first date so my hubby treated us to a night away in Cartmel in the Lake District with dinner, bed and breakfast in L’Enclume.

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Cartmel Priory

I will talk more about the amazing food we enjoyed in my next post but I wanted to share that even though we are fortunate to travel and dine in some amazing places our lost children are never far from our minds.

Before we headed home I visited the amazingly historic Priory at Cartmel that has an 800 year old history and lit candles for Violet and Arthur.  I also took some photos of the amazing building.  You can see them all here http://violet-skies.com/portfolio/cartmel-lake-district/

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Inside Cartmel Priory

Life isn’t fair

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Life isn't fair

This is my mantra for today.  We all go through phases in our life were we feel we haven’t been dealt a fair hand and especially when you look at social media to see all the happy photos of people enjoying life.  A life when looking through the rose tinted glasses of instagram and facebook often looks happier than yours.  You do have to remember that these channels often give a different view of the world and most of these people often have their own internal issues and difficulties.

I always like to remember that the cliche of “there’s always someone that’s worse off than you” is very true.  You only need to switch on the news to see those who are much worse off.  Be thankful for what we do have; if only for the roof over our heads, the food in our stomachs, wonderful friends and family.  Think positively!

Love, Sarah x

My Story

I am a proud and heart-broken mother to two angels.

My first angel

My first born was a beautiful baby girl named Violet who beat all the odds after she had open heart surgery at just 4 days old at Alder Hey Hospital. She lived a full and happy life for 15 months until passing away suddenly at Manchester Children’s Hospital. We didn’t know what happened and the coroner launched an inquest (read about it here)

Swimming shot

My second angel

My second angel was our rainbow baby Arthur who was born sleeping at 22 weeks, almost a year after Violet passed away. He was a TFMR and had severe brain abnormalities.  He gave us so much hope for the future and when we lost him in September 2017 we felt as though our hope for the future died with him. (read more about it here)

Graves

The last few years

It has been an extremely devastating and challenging few years for both me and my husband. Despite all of this devastating news we still strive to make the most of our lives, as we understand how fragile life is and how much our daughter Violet loved life. She wouldn’t want us to mope and suffer. We’ve learnt to be grateful for the 15 wonderful months we spent with her, that we might not have had if it wasn’t for the top NHS heart surgeons and care at Alder Hey Hospital we had in the very beginning.  To them and especially top heart surgeon Mr Prem we will be eternally grateful. (link to our fundraising here)

Violet Skies

A friend of mine suggested (over a year ago) I try to help others by giving advice and strategies for coping with loss. So this blog has been a long time coming but I have waited until I felt strong enough to share. It will detail the ways in which I have tried to deal with everything in case it might help someone else who has unfortunately found themselves in a similar situation.

It won’t all be heavy or emotional reading though as lots of my coping strategies include travel, eating amazing food and architecture/interior photography. Hopefully it will make enjoyable reading for those out there that are lucky enough not to be in a situation like mine. It will be full of photos showcasing some of the amazing places we have travelled to and the things we do in memory of our beautiful children.

I hope this site can give others inspiration and hope to overcome anything they are currently battling with in their lives.

Love & hugs,

Sarah

Interesting blog posts –

Pregnancy after loss & PTSD

What happens when you get your rainbow